There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD
are significantly underrepresented in health research. Even when researchers purposively …

Social, scientific, and ethical factors underscore the value of respectfully including people
with intellectual/developmental disabilities in research despite significant barriers to their …

People with disabilities are largely absent from mainstream health research. Exclusion of
people with disabilities may be explicit, attributable to poorly justified exclusion criteria, or …

Although persons with disabilities of all kinds have as wide a range of health conditions as
the general population, they are profoundly underrepresented in mainstream health …

Background Children with disabilities have the right to participate in health research so their
priorities, needs, and experiences are included. Health research based primarily on adult …

People with intellectual disability (ID) are increasingly involved in stakeholder-engaged
research, such as “inclusive research”(IR). To understand the processes that foster and …

Disability is often considered a health outcome disproportionately experienced by minority
groups. It is also possible to view people with disabilities as a minority group that itself …

Background Adults with intellectual disability experience disparities in social determinants of
health and health outcomes. While new knowledge can advance health equity, adults with …

Background Community-based participatory research (CBPR) seeks to improve the
responsiveness of science to community priorities and foster positive community change …

Recent decades have seen an increase in the use of qualitative research methods within
disability research, often seeking to include the voices of individuals with disabilities in …