Moving forward: breaking the cycle of mistrust between American Indians and researchers

CM Pacheco, SM Daley, T Brown… - … journal of public …, 2013 - ajph.aphapublications.org
American Indians (AIs) have some of the poorest documented health outcomes of any
racial/ethnic group. Research plays a vital role in addressing these health disparities …

Promoting ethical research with American Indian and Alaska Native people living in urban areas

NP Yuan, J Bartgis, D Demers - American Journal of …, 2014 - ajph.aphapublications.org
Most health research with American Indian and Alaska Native (AI/AN) people has focused
on tribal communities on reservation lands. Few studies have been conducted with AI/AN …

[HTML][HTML] “We're checking them out”: Indigenous and non-Indigenous research participants' accounts of deciding to be involved in research

M Guillemin, L Gillam, E Barnard, P Stewart… - International Journal for …, 2016 - Springer
Background It is important for researchers to understand the motivations and decision-
making processes of participants who take part in their research. This enables robust …

Asian Americans are less willing than other racial groups to participate in health research

Y Liu, A Elliott, H Strelnick… - Journal of clinical and …, 2019 - cambridge.org
Background: Asian Americans constitute 5% of the US population. Their willingness to
participate in research is important to examine because it influences participation rates and …

Health disparities research with American Indian communities: The importance of trust and transparency

MC Skewes, VM Gonzalez, JA Gameon… - American Journal of …, 2020 - Wiley Online Library
Abstract American Indian and Alaska Native (AI/AN) communities experience notable health
disparities associated with substance use, including disproportionate rates of …

Community-based participatory research (CBPR) with indigenous communities: producing respectful and reciprocal research

JK Tobias, CAM Richmond… - Journal of empirical …, 2013 - journals.sagepub.com
The health disparities between Indigenous and non-Indigenous peoples in Canada
continue to grow despite an expanding body of research that attempts to address these …

Racial differences in factors that influence the willingness to participate in medical research studies

VL Shavers, CF Lynch, LF Burmeister - Annals of epidemiology, 2002 - Elsevier
PURPOSE: The relative absence of racial/ethnic minorities among medical research
subjects is receiving considerable attention because of recent government mandates for …

More than Tuskegee: understanding mistrust about research participation

DP Scharff, KJ Mathews, P Jackson… - Journal of health care …, 2010 - muse.jhu.edu
This paper describes results of a qualitative study that explored barriers to research
participation among African American adults. A purposive sampling strategy was used to …

Research ethics and indigenous communities

A Kelley, A Belcourt-Dittloff… - American journal of …, 2013 - ajph.aphapublications.org
Institutional review boards (IRBs) function to regulate research for the protection of human
participants. We share lessons learned from the development of an intertribal IRB in the …

Protecting the Navajo people through tribal regulation of research

D Brugge, M Missaghian - Science and Engineering Ethics, 2006 - Springer
This essay explores the process and issues related to community collaborative research that
involves Native Americans generally, and specifically examines the Navajo Nation's efforts …