Researchers are required to provide opportunities for people with intellectual disabilities to
be included in research which affects their lives. This paper reports on one research study …

Involving individuals with intellectual disability in research can be difficult, researchers often
focus on those with a mild/moderate disability as they are often more accessible. However …

Background A rights‐based agenda, informed by the UNCRPD, that advocates person‐
centredness, inclusion, empowerment and self‐determination is shaping service provision to …

Methods Grounded Theory methods were used to explore experiential knowledge of
persons with disabilities, after a period of rehabilitation and adjustment of at least one year …

Aims and objectives The aim of this paper is to explore how making reasonable adjustments
to the process of securing ethical approval for research can facilitate the meaningful …

Balancing the demands of research and ethics is always challenging, and even more so
when recruiting vulnerable groups. Within the context of current legislation and international …

Positive developments in inclusion in line with 'Nothing about us without us' have rarely
extended to people with profound intellectual disabilities. Advances in inclusive research …

Background Persons with intellectual and developmental disabilities have had regrettably
few opportunities to voice their opinions on aspects of research with which they have had …

This paper discusses possibilities of designing ethical research practice in relation to people
with profound intellectual and multiple disabilities (PIMD). We will argue that in the case of …

The rights of people with intellectual and developmental disabilities to be included in
research is increasingly being recognised. Given this, there is a need for further …