'It struck at the heart of who I thought I was': A meta‐synthesis of the qualitative literature examining the experiences of people with multiple sclerosis
J Desborough, C Brunoro, A Parkinson… - Health …, 2020 - Wiley Online Library
Background People with multiple sclerosis (MS) have varied experiences and approaches
to self‐management. This review aimed to explore the experiences of people with MS, and …
to self‐management. This review aimed to explore the experiences of people with MS, and …
What can we learn from the personal insights of individuals living and coping with multiple sclerosis?
KS Malcomson, AS Lowe-Strong… - Disability and …, 2008 - Taylor & Francis
Purpose. The aim of this qualitative study was to explore the personal accounts of
individuals with Multiple Sclerosis (MS). Hence the study presents individuals experiences …
individuals with Multiple Sclerosis (MS). Hence the study presents individuals experiences …
The path to self-management: a qualitative study involving older people with multiple sclerosis
M Ploughman, MW Austin, M Murdoch… - Physiotherapy …, 2012 - utpjournals.press
Purpose: This qualitative study sought to explore older people's experience of ageing with
multiple sclerosis (MS) and to describe the natural history of self-management from their …
multiple sclerosis (MS) and to describe the natural history of self-management from their …
What do multiple sclerosis patients and their caregivers perceive as unmet needs?
L Lorefice, G Mura, G Coni, G Fenu, C Sardu, J Frau… - BMC neurology, 2013 - Springer
Background Multiple sclerosis (MS) has a major impact on the physical, psychological and
social life of patients and their families. The aim of this study was to evaluate the different …
social life of patients and their families. The aim of this study was to evaluate the different …
[HTML][HTML] Patients', carers' and providers' experiences and requirements for support in self-management of multiple sclerosis: a qualitative study
F Deibel, M Edwards, A Edwards - European Journal for Person …, 2013 - ejpch.org
Background: Self-management is a process increasingly promoted for the management of
long term conditions, both for ethical reasons of enhancing autonomy and for likely cost …
long term conditions, both for ethical reasons of enhancing autonomy and for likely cost …
Perspectives on self-management in multiple sclerosis: a focus group study
ES Knaster, KM Yorkston, K Johnson… - … journal of MS care, 2011 - meridian.allenpress.com
The aim of this study was to elucidate the experience of self-management among people
with multiple sclerosis (MS) and gather their input to inform a self-management intervention …
with multiple sclerosis (MS) and gather their input to inform a self-management intervention …
Multiple sclerosis self-management model: personal and contextual requirements for successful self-management
S Ghahari, SJ Forwell, MJ Suto, S Morassaei - Patient education and …, 2019 - Elsevier
Objective To explore self-management strategies used by people with multiple sclerosis
(MS) with aim of developing a MS self-management model. Methods A grounded theory …
(MS) with aim of developing a MS self-management model. Methods A grounded theory …
A qualitative investigation of lay perspectives of diagnosis and self-management strategies employed by people with progressive multiple sclerosis
J Frost, J Grose, N Britten - Health:, 2017 - journals.sagepub.com
This article explores how people with progressive multiple sclerosis give meaning to their
experiences. It builds upon the self-management literature, which has captured the tension …
experiences. It builds upon the self-management literature, which has captured the tension …
Experiences of diagnosis and treatment among people with multiple sclerosis
RG Edwards, JH Barlow… - Journal of evaluation in …, 2008 - Wiley Online Library
Rationale, aims and objectives The aim of this qualitative study was to examine patients'
experiences of being diagnosed with multiple sclerosis (MS), the information that they were …
experiences of being diagnosed with multiple sclerosis (MS), the information that they were …
Is it worth it?: The experiences of persons with multiple sclerosis as they access health care to manage their condition
J Pétrin, C Donnelly, MA McColl… - Health …, 2020 - Wiley Online Library
Background People with multiple sclerosis (MS) require complex care throughout life.
Canadians with MS are high users of health‐care services, yet still report unmet health‐care …
Canadians with MS are high users of health‐care services, yet still report unmet health‐care …