Underrepresented and Underserved Populations in Neurological Research

CC Windon, AJ Jackson, GA Aguirre… - Seminars in …, 2024 - thieme-connect.com
Underserved and underrepresented populations have historically been excluded from
neurological research. This lack of representation has implications for translation of research …

Recruitment of older adults with dementia for research: An integrative review

R Davis, P Bekker - Research in gerontological nursing, 2022 - journals.healio.com
Recruitment of persons with dementia into research studies is essential to provide evidence
for effective care and treatment. However, recruitment is known to be difficult for this …

Increasing engagement of Hispanics/Latinos in clinical trials on Alzheimer's disease and related dementias

DX Marquez, A Perez, JK Johnson… - … Research & Clinical …, 2022 - Wiley Online Library
Abstract Introduction Despite evidence that Hispanic/Latino populations are 1.5 times more
likely than non‐Latino Whites to develop Alzheimer's disease and related dementias …

Perspective on the “African American participation in Alzheimer disease research: Effective strategies” workshop, 2018

A Denny, M Streitz, K Stock… - Alzheimer's & …, 2020 - Wiley Online Library
Abstract The Washington University School of Medicine Knight Alzheimer Disease Research
Center's “African American Participation in Alzheimer Disease Research: Effective …

Recruitment of pre-dementia participants: main enrollment barriers in a longitudinal amyloid-PET study

I Bader, I Bader, I Lopes Alves, D Vállez García… - Alzheimer's Research & …, 2023 - Springer
Background The mismatch between the limited availability versus the high demand of
participants who are in the pre-dementia phase of Alzheimer's disease (AD) is a bottleneck …

Gender bias in clinical trial enrollment: female authorship matters

VY Chhaya, CC Binion, SM Mulles… - Annals of Vascular …, 2023 - Elsevier
Background Despite initiatives to promote equal enrollment of human subjects in clinical
trials, females continue to be underrepresented. The goal of this work is to determine if …

Multisectoral Collaborations to Increase Recruitment and Retention of Diverse Older Adults in Biomedical Research

R Wong, JR Grullon, SE McNamara… - The Journals of …, 2024 - academic.oup.com
Background Older adults, especially minoritized racial-ethnic groups, are historically
underrepresented in biomedical research. This study summarizes the development and …

Association between pain and fall worry among community-dwelling older people with cognitive impairment in the United States

Y Zhou, NG Choi, T Sadak, N Ghosh… - Innovation in …, 2023 - academic.oup.com
Abstract Background and Objectives Previous studies have found that pain is associated
with fall worry among community-dwelling older people. However, both pain and fall worry …

Digital culturally tailored marketing for enrolling Latino participants in a web‐based registry: Baseline metrics from the Brain Health Registry

MT Ashford, MR Camacho, C Jin… - Alzheimer's & …, 2023 - Wiley Online Library
Introduction This culturally tailored enrollment effort aims to determine the feasibility of
enrolling 5000 older Latino adults from California into the Brain Health Registries (BHR) …

Retaining participants in longitudinal studies of Alzheimer's disease

M Gabel, RM Bollinger, DW Coble… - Journal of …, 2022 - content.iospress.com
Background: Retention of study participants is essential to advancing Alzheimer's disease
(AD) research and developing therapeutic interventions. However, recent multi-year AD …