[HTML][HTML] Recruitment and retention of underrepresented populations in Alzheimer's disease research: a systematic review

AL Gilmore-Bykovskyi, Y Jin, C Gleason… - Alzheimer's & Dementia …, 2019 - Elsevier
Introduction Alzheimer's disease and related dementias (ADRD) disproportionately impact
racial and ethnic minority and socioeconomically disadvantaged adults. Yet, these …

Modifiable barriers for recruitment and retention of older adults participants from underrepresented minorities in Alzheimer's disease research

KK Indorewalla, MK O'Connor… - Journal of …, 2021 - journals.sagepub.com
Clinical Alzheimer's disease (AD) trials currently face a critical shortfall of thousands of
eligible participants, which inflates the duration and cost of the clinical study as well as …

Recruitment and retention strategies for minority or poor clinical research participants: lessons from the Healthy Aging in Neighborhoods of Diversity across the Life …

N Ejiogu, JH Norbeck, MA Mason… - The …, 2011 - academic.oup.com
Purpose of the study: Investigating health disparities requires studies designed to recruit and
retain racially and socioeconomically diverse cohorts. It is critical to address the barriers that …

Representativeness of samples enrolled in Alzheimer's disease research centers

M Arce Rentería, TM Mobley… - Alzheimer's & …, 2023 - Wiley Online Library
To generalize findings on the mechanisms and prognosis in Alzheimer's disease and
related dementias (ADRD), it is critical for ADRD research to be representative of the …

Obstacles and opportunities in Alzheimer's clinical trial recruitment

JL Watson, L Ryan, N Silverberg, V Cahan… - Health …, 2014 - healthaffairs.org
The 2012 National Plan to Address Alzheimer's Disease set an ambitious goal: to both
prevent and effectively treat Alzheimer's disease by 2025. To reach this goal, tens of …

The relationship between retinal layers and brain areas in asymptomatic first-degree relatives of sporadic forms of Alzheimer's disease: an exploratory analysis

I López-Cuenca, A Marcos-Dolado… - Alzheimer's Research & …, 2022 - Springer
Background Two main genetic risks for sporadic Alzheimer's disease (AD) are a family
history and ɛ4 allele of apolipoprotein E. The brain and retina are part of the central nervous …

Dementia registries around the globe and their applications: a systematic review

K Krysinska, PS Sachdev, J Breitner, M Kivipelto… - Alzheimer's & …, 2017 - Elsevier
Patient registries are valuable tools helping to address significant challenges in research,
care, and policy. Registries, well embedded in many fields of medicine and public health …

[HTML][HTML] Development of a subjective cognitive decline questionnaire using item response theory: a pilot study

KA Gifford, D Liu, RR Romano, RN Jones… - Alzheimer's & Dementia …, 2015 - Elsevier
Introduction Subjective cognitive decline (SCD) may indicate unhealthy cognitive changes,
but no standardized SCD measurement exists. This pilot study aimed to identify reliable …

[HTML][HTML] African Americans are less likely to enroll in preclinical Alzheimer's disease clinical trials

Y Zhou, D Elashoff, S Kremen, E Teng… - Alzheimer's & Dementia …, 2017 - Elsevier
Introduction Alzheimer's disease (AD) incidence is disproportionately high in African
Americans, yet, recruitment of this community to AD clinical trials is challenging. Methods We …

Recruitment of pre-dementia participants: main enrollment barriers in a longitudinal amyloid-PET study

I Bader, I Bader, I Lopes Alves, D Vállez García… - Alzheimer's Research & …, 2023 - Springer
Background The mismatch between the limited availability versus the high demand of
participants who are in the pre-dementia phase of Alzheimer's disease (AD) is a bottleneck …