Communicating the results of clinical research to participants: attitudes, practices, and future directions

DI Shalowitz, FG Miller - PLoS medicine, 2008 - journals.plos.org
Communicating the Results of Clinical Research to Participants: Attitudes, Practices, and Future
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Anxiety, fear of cancer, and perceived risk of cancer following lung cancer screening

MM Byrne, J Weissfeld… - Medical Decision …, 2008 - journals.sagepub.com
Background. Lung cancer screening can result in a high rate of indeterminate findings and
has not yet been proven to be efficacious in reducing mortality. To date, the psychological …

A DNA resequencing array for pathogenic mutation detection in hypertrophic cardiomyopathy

S Fokstuen, R Lyle, A Munoz, C Gehrig… - Human …, 2008 - Wiley Online Library
Hypertrophic cardiomyopathy (HCM) is a heterogeneous autosomal dominant cardiac
disorder with a prevalence of 1 in 500. Over 450 different pathogenic mutations in at least 16 …

Familial disease with a risk of sudden death: a longitudinal study of the psychological consequences of predictive testing for long QT syndrome

KSWH Hendriks, MMWB Hendriks, E Birnie… - Heart Rhythm, 2008 - Elsevier
BACKGROUND: Since 1996, in the Netherlands, cardiac and molecular screening has been
performed in families with the long QT syndrome, a potentially life-threatening but treatable …

Monitoring coping style moderates emotional reactions to genetic testing for hereditary nonpolyposis colorectal cancer: a longitudinal study

S Shiloh, L Koehly, J Jenkins, J Martin… - Psycho …, 2008 - Wiley Online Library
Objectives: The emotional effects of genetic testing for hereditary nonpolyposis colorectal
cancer (HNPCC) provided within a counseling program were assessed among 253 …

Psychological factors associated with emotional responses to receiving genetic risk information

P Bennett, C Wilkinson, J Turner, K Brain… - Journal of genetic …, 2008 - Springer
This study identified levels of distress, and predictors of levels of distress, in women
undergoing assessment for genetic risk of breast/ovarian cancer based on their family …

Psychological and cancer-specific distress at 18 months post-testing in women with demonstrated BRCA1 mutations for hereditary breast/ovarian cancer

JG Reichelt, P Møller, K Heimdal, AA Dahl - Familial Cancer, 2008 - Springer
Aim The aim of this longitudinal study was to explore both levels of and factors predictive of
psychological and cancer-specific distress in women with demonstrated BRCA1 mutations …

Predictors of breast cancer‐related distress following mammography screening in younger women on a family history breast screening programme

K Brain, BJ Henderson, S Tyndel… - Psycho …, 2008 - Wiley Online Library
Objective: This longitudinal study investigated pre‐screening factors that predicted breast
cancer‐specific distress among 1286 women who were undergoing annual mammography …

Experiences of Genetic Counseling for BRCA1/2 Among Recently Diagnosed Breast Cancer Patients: A Qualitative Inquiry

ST Vadaparampil, GP Quinn… - Journal of …, 2008 - Taylor & Francis
For newly diagnosed breast cancer patients, BRCA1/2 genetic counseling (GC) and/or
testing has the greatest potential to affect treatment choices if it occurs prior to definitive …

[HTML][HTML] Putting it all behind: long-term psychological impact of an inconclusive DNA test result for breast cancer

S van Dijk, W Otten, RAEM Tollenaar… - Genetics in …, 2008 - Elsevier
Purpose An inconclusive DNA-result for breast cancer may leave women with uncertainty
that cannot be relieved. We assessed the influence of beliefs women held about their …