[HTML][HTML] Effects of genetic risk information on children's psychosocial wellbeing: a systematic review of the literature

CH Wade, BS Wilfond, CM McBride - Genetics in Medicine, 2010 - Elsevier
Purpose As advances in research have made a growing number of genetic tests available,
clinicians will increasingly be faced with making decisions about when offering genetic …

Psychological adjustment among male partners in response to women's breast/ovarian cancer risk: a theoretical review of the literature

KA Sherman, NA Kasparian… - Psycho‐Oncology, 2010 - Wiley Online Library
Objective: For women at high risk of developing hereditary breast and/or ovarian cancer the
process of undergoing genetic testing is anxiety provoking and stressful, entailing difficult …

Women's experiences with genomic testing for breast cancer recurrence risk

JP Tzeng, D Mayer, AR Richman, I Lipkus, PK Han… - Cancer, 2010 - Wiley Online Library
BACKGROUND: Few studies have examined how patients understand and use genomic
test results when deciding about treatment. This study examined how women receive and …

Genetic risk perception and reproductive decision making among people with epilepsy

KL Helbig, BA Bernhardt, LJ Conway, KD Valverde… - …, 2010 - Wiley Online Library
We investigated estimated offspring risk among people with epilepsy and factors important
in the family‐planning process. Data were collected for 88 participants using a questionnaire …

Women's constructions of the'right time'to consider decisions about risk-reducing mastectomy and risk-reducing oophorectomy

AF Howard, JL Bottorff, LG Balneaves, C Kim-Sing - BMC women's health, 2010 - Springer
Background Women who are notified they carry a BRCA1/2 mutation are presented with
surgical options to reduce their risk of breast and ovarian cancer, including risk-reducing …

Breast cancer prevention: patient decision making and risk communication in the high risk setting

EM Ozanne, E Wittenberg, JE Garber… - The Breast …, 2010 - Wiley Online Library
The purpose of this study was to investigate prevention decision making among women at
high risk for breast cancer, including patient preferences for preventive interventions, patient …

Returning individual research results: development of a cancer genetics education and risk communication protocol

JS Roberts, DI Shalowitz… - Journal of Empirical …, 2010 - journals.sagepub.com
The obligations of researchers to disclose clinically and/or personally significant individual
research results are highly debated, but few empirical studies have addressed this topic. We …

Genetic testing and risk interpretation: How do women understand lifetime risk results?

Y Hanoch, T Miron-Shatz… - Judgment and Decision …, 2010 - cambridge.org
Genetic screening for BRCA1 and BRCA2 gives women the opportunity for early detection,
surveillance, and intervention. One key feature of genetic testing and counseling is the …

Patient responses to genetic information: studies of patients with hereditary cancer syndromes identify issues for use of genetic testing in nephrology practice

KA Kaphingst, CM McBride - Seminars in nephrology, 2010 - Elsevier
Advances in the genetic basis of kidney disease may mean that genetic testing is
increasingly important in reducing disease morbidity and mortality among patients …

Hereditary breast and ovarian cancer syndrome and issues in pediatric and adolescent practice

JD Herman, H Appelbaum - Journal of Pediatric and Adolescent …, 2010 - jpagonline.org
Hereditary breast and ovarian cancer syndrome (HBOC) is responsible for most hereditary
breast and ovarian cancers. As an inheritable genetic disorder, parental carrier status …