A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions
SM Aoun, B Bentley, L Funk, C Toye… - Palliative …, 2013 - journals.sagepub.com
Background: There is growing awareness that different terminal diseases translate into
different family caregiver experiences, and the palliative and supportive care needs of these …
different family caregiver experiences, and the palliative and supportive care needs of these …
What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care?
A Hogden, D Greenfield, P Nugus… - Patient preference and …, 2013 - Taylor & Francis
Purpose Family carers of patients with amyotrophic lateral sclerosis (ALS) are presumed to
have frequent involvement in decision-making for symptom management and quality of life …
have frequent involvement in decision-making for symptom management and quality of life …
The impact on the family carer of motor neurone disease and intervention with noninvasive ventilation
Background: The diagnosis of motor neurone disease (MND) has a profound effect on the
functioning and well-being of both the patient and their family, with studies describing an …
functioning and well-being of both the patient and their family, with studies describing an …
What palliative care can do for motor neurone disease patients and their families
D Oliver, S Aoun - European Journal of Palliative Care, 2013 - espace.curtin.edu.au
Appropriate palliative care is essential for people with motor neurone disease, a progressive
and irreversible neurological condition that can have distressing symptoms in its later …
and irreversible neurological condition that can have distressing symptoms in its later …
[PDF][PDF] What influences patient-centred decision-making in motor neurone disease
A Hogden - A study of stakeholder perspectives [Unpublished …, 2013 - scholar.archive.org
Motor neurone disease (MND), also known as amyotrophic lateral sclerosis, presents many
challenges to patient and carer engagement in decision-making. A progressive and terminal …
challenges to patient and carer engagement in decision-making. A progressive and terminal …
[PDF][PDF] Anna Collins, Carrie Lethborg, 2 Caroline Brand, 3, 4 Michelle Gold, 5
G Moore, V Sundararajan, M Murphy, J Philip - researchgate.net
Objectives Carers of patients with high-grade primary malignant glioma (PMG) are known to
face extraordinary challenges, as they care for patients with multiple profound and often …
face extraordinary challenges, as they care for patients with multiple profound and often …
[PDF][PDF] Patienters och närståendes upplevelser av att leva med Amyotrofisk lateralscleros (ALS):-en litteraturöversikt
D Svelander, R Andersson - 2013 - diva-portal.org
Bakgrund: Att leva med ALS är mycket psykiskt påfrestande för både närstående,
vårdpersonalen och för patienten själv. Därför är det viktigt med kompetent vårdpersonal …
vårdpersonalen och för patienten själv. Därför är det viktigt med kompetent vårdpersonal …
[PDF][PDF] Att leva med ALS i hemmet:: Ur patient och anhörig perspektiv
S Bylund - 2013 - diva-portal.org
Introduktion: Amyotrofisk lateralskleros (ALS) är en neurodegenerativ sjukdom där
motornurenen brytts ner och dör vilket ger en stadig försämring av de viljestyrda musklerna i …
motornurenen brytts ner och dör vilket ger en stadig försämring av de viljestyrda musklerna i …
[PDF][PDF] What influences patient-centred decision-making in motor neurone disease? A study of stakeholder perspectives
A Hogden - 2013 - unsworks.unsw.edu.au
Motor neurone disease (MND), also known as amyotrophic lateral sclerosis, presents many
challenges to patient and carer engagement in decision-making. A progressive and terminal …
challenges to patient and carer engagement in decision-making. A progressive and terminal …
Amyotrofisk lateral skleros (ALS): Familjens upplevelser och omvårdnadsbehov
I Jansson, E Vilén - 2013 - diva-portal.org
Bakgrund: Amyotrofisk lateral skleros (ALS) är en obotlig sjukdom med ett snabbt
sjukdomsförlopp. Det blir allt vanligare att familjen väljer att vårda sin anhörige i hemmet …
sjukdomsförlopp. Det blir allt vanligare att familjen väljer att vårda sin anhörige i hemmet …