Palliative care and neurology: time for a paradigm shift

I Boersma, J Miyasaki, J Kutner, B Kluger - Neurology, 2014 - AAN Enterprises
Palliative care is an approach to the care of patients and families facing progressive and
chronic illnesses that focuses on the relief of suffering due to physical symptoms …

The evidence for symptomatic treatments in amyotrophic lateral sclerosis

TM Jenkins, H Hollinger… - Current opinion in …, 2014 - journals.lww.com
Multidisciplinary specialist care appears to improve quality of life and survival. Riluzole
remains the only available disease-modifying medication and confers a survival advantage …

The challenges and suffering of caring for people with primary malignant glioma: qualitative perspectives on improving current supportive and palliative care practices

A Collins, C Lethborg, C Brand, M Gold… - BMJ supportive & …, 2014 - spcare.bmj.com
Objectives Carers of patients with high-grade primary malignant glioma (PMG) are known to
face extraordinary challenges, as they care for patients with multiple profound and often …

Acceptance and decision making in amyotrophic lateral sclerosis from a life-course perspective

G Foley, V Timonen… - Qualitative health …, 2014 - journals.sagepub.com
Researchers have explored perceptions of health care services among people with
amyotrophic lateral sclerosis (ALS), but little is known about how and why people with ALS …

[HTML][HTML] Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease

B Bentley, M O'Connor, LJ Breen, R Kane - BMC palliative care, 2014 - Springer
Background Dignity therapy is a brief psychotherapy that has been shown to enhance the
end of life experience. Dignity therapy often involves family carers to support patients …

O familiar cuidador eo processo de fim de vida e morte de seu ente querido: uma compreensão fenomenológica

AP Fujisaka - 2014 - teses.usp.br
O presente trabalho teve como objetivo compreender a vivência do familiar cuidador
durante e após cuidar de um ente querido em seu processo de fim de vida e morte. Com os …

[PDF][PDF] Patient och anhörigas upplevelse av att leva med ALS-en litteraturöversikt.

V Axelsson, E Forneman Wik - 2014 - diva-portal.org
Bakgrund: ALS är fortkortningen av Amyotrofisk lateralskleros. Sjukdomen medför att de
nervceller som styr skelettmuskulaturen dör, till slut påverkas andningsmuskulaturen och vid …