Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era

D Chalmers, D Nicol, J Kaye, J Bell, AV Campbell… - BMC medical …, 2016 - Springer
Biobanks have been heralded as essential tools for translating biomedical research into
practice, driving precision medicine to improve pathways for global healthcare treatment and …

Understanding public reactions to commercialization of biobanks and use of biobank resources

D Nicol, C Critchley, R McWhirter, T Whitton - Social science & medicine, 2016 - Elsevier
Biobanks will be essential to facilitate the translation of genomic research into real
improvements to healthcare. Biobanking is a long-term commitment, requiring public support …

Fundamental considerations for biobank legacy planning

LAM Matzke, B Fombonne, PH Watson… - Biopreservation and …, 2016 - liebertpub.com
Biobanking in its various forms is an activity involving the collection of biospecimens and
associated data and their storage for differing lengths of time before use. In some cases …

Samples and data accessibility in research biobanks: an explorative survey

M Capocasa, P Anagnostou, F D'Abramo, G Matteucci… - PeerJ, 2016 - peerj.com
Biobanks, which contain human biological samples and/or data, provide a crucial
contribution to the progress of biomedical research. However, the effective and efficient use …

Precision medicine: drowning in a regulatory soup?

D Nicol, T Bubela, D Chalmers… - Journal of Law and …, 2016 - academic.oup.com
6. Centre for Health, Law and Emerging Technologies, University of Oxford, Oxford,
Oxfordshire, UK 7. Faculty of Law, University of Cambridge, Cambridge, Cambridgeshire …

Locating biobanks in the Canadian privacy maze

KM Saulnier, Y Joly - Journal of Law, Medicine & Ethics, 2016 - cambridge.org
Although Canada has not yet enacted any biobanking-specific privacy law, guidance and
oversight are provided via various federal and provincial health and privacy-related laws as …

Genomic databases, access review, and data access committees

M Shabani, BM Knoppers, P Borry - Medical and Health Genomics, 2016 - Elsevier
Sharing results of genomic research through controlled-access databases has gained
momentum in recent years. Principles and policies drafted by international and national …

Biobanking: A challenge facing pathologists in Egypt

W El-Aal, N Abaas… - British Journal …, 2016 - publications.eprintglobalarchived …
Background: Biobanking today plays a key tool in biomedical research. Establishment and
proper running of biobanks in developing countries is confronted with a number of …

[PDF][PDF] Manejo de muestras y datos en la investigación de las enfermedades raras: Biobancos

CM Martín, J Arias - Ética en la investigación de las enfermedades …, 2016 - ciberisciii.es
En la actualidad los biobancos son un pilar fundamental, tanto para la investigación
genética y epidemiológica en enfermedades raras, dada su baja frecuencia y …

[图书][B] The Tragedy of the Commons: Reframing Bioethics in a New Millennium

K Moodley - 2016 - blogs.sun.ac.za
Pietermaritzburg in the former Natal, now KwaZulu-Natal. She grew up in Durban during the
height of apartheid. In accordance with the Group Areas Act of 1950, her family was …