Pediatric palliative care for children with progressive non-malignant diseases

H Siden - Children, 2018 - mdpi.com
A substantial number of children cared for by pediatric palliative care physicians have
progressive non-malignant conditions. Some elements of their care overlap with care for …

Supporting parent caregivers of children with life-limiting illness

KD Koch, BL Jones - Children, 2018 - mdpi.com
The well-being of parents is essential to the well-being of children with life-limiting illness.
Parents are vulnerable to a range of negative financial, physical, and psychosocial issues …

Outcome measurement in paediatric palliative care: lessons from the past and future developments

J Downing, E Namisango, R Harding - 2018 - nru.uncst.go.ug
The need for paediatric palliative care (PPC) globally is great yet there is limited evidence of
the quality or outcomes of the care provided. The lack of an outcome measure for PPC has …

A summary of pediatric palliative care team structure and services as reported by centers caring for children with cancer

MS Weaver, AR Rosenberg, J Tager… - Journal of palliative …, 2018 - liebertpub.com
Background: Little is known about the composition, availability, integration, communication,
perceived barriers, and work load of pediatric palliative care (PPC) providers serving …

Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014

M Friedel, B Brichard, C Fonteyne, M Renard… - BMC palliative …, 2018 - Springer
Background Although continuity of care in paediatric palliative care (PPC) is considered to
be an essential element of quality of care, it's implementation is challenging. In Belgium, five …

Life-limiting conditions at a university pediatric tertiary care center: a cross-sectional study

A Bösch, J Wager, B Zernikow… - Journal of Palliative …, 2018 - liebertpub.com
Background: The increasing number of children with life-threatening and life-limiting
conditions requires an individualized approach and additional supportive care in hospitals …

The 'surprise'question in paediatric palliative care: a prospective cohort study

K Burke, LH Coombes, A Menezes… - Palliative …, 2018 - journals.sagepub.com
Background: The question 'would you be surprised if this patient died in the next 12-months'
is widely used for identifying adult patients in the last year of life. However, this has not yet …

Impaired mobility associated with an increased likelihood of death in children: a systematic review

S Nissen, E Purssell, K Shaw, C Bailey… - Journal of child …, 2018 - journals.sagepub.com
Improved identification of children with an increased likelihood of death can support
appropriate provision of integrated palliative care. This systematic review aims to consider …

Palliativmedizin in der pädiatrischen Onkologie und Hämatologie

E Bergsträsser - Pädiatrische Hämatologie und Onkologie, 2018 - Springer
Eine palliative Betreuung eines krebskranken Kindes oder Jugendlichen setzt in der Regel
ein, wenn die Tumorerkrankung als unheilbar beurteilt werden muss und keine realistischen …

Factors Associated with Physician Referral to Pediatric Palliative Care Prior to Death and a Survey of Care Providers' Perspectives on Pediatric Palliative Care

K Ho - 2018 - search.proquest.com
This study identified factors related to pediatric palliative care (PPC) referral, located the
barriers to early integration, and proposed strategies for enhancing early access …