Background Partners are often the main caregivers in the care for patients with amyotrophic
lateral sclerosis (ALS) and progressive muscular atrophy (PMA). Providing care during the …

Background: The absence of curative medication for amyotrophic lateral sclerosis (ALS)
makes palliative care and understanding quality of life (QoL) in ALS a clinical priority …

Motor neuron disease (MND) is a progressive neurodegenerative disease. Ideal
management plan in MND includes palliative care initiated from the time of diagnosis. At …

Background A developing body of evidence has provided valuable insight into the
experiences of caregivers of people with motor neuron disease; however, understandings of …

Background Progressive neurological diseases, such as multiple sclerosis, Parkinson's
disease, Huntington's disease, significantly interfere with patients' lives, and those of their …

Background: Burden and distress among family carers of people living with motor neurone
disease (MND) are reported widely. Evidence-based screening tools to help identify these …

Methods This qualitative research sought to address this gap in knowledge by determining
the content and timing of end-of-life options clinicians communicate to people with MND and …

Bakgrund Palliativ vård innebär vård av patienter som drabbats av livshotande sjukdom med
förväntad förkortad levnad. Syftet med vården är att lindra besvärande symtom samt öka …

Preterm babies receiving respiratory support on a neonatal unit, particularly over a
prolonged period, require attention to their ongoing developmental needs. While high …

The aim of this study was to examine what demand factors place informal caregivers of
patients with Amyotrophic lateral sclerosis (ALS) or progressive muscular atrophy (PMA) at …