Abstract Context Amyotrophic Lateral Sclerosis (ALS) is a fatal neurodegenerative disease,
associated with impaired quality of life for patients and caregivers. As treatment is largely …

Background: Communication about end of life, including advance care planning, life-
sustaining therapies, palliative care, and end-of-life options, is critical for the clinical …

People with amyotrophic lateral sclerosis become dependent on caregivers for daily
activities and to perform self‐care activities at home. The family caregiver has an important …

Abstract Background Although Motor Neurone Disease (MND) caregivers are most
challenged physically and psychologically, there is a paucity of population-based research …

The purpose of this study was to describe the meaning of the suffering experience of Korean
ALS family caregivers. This is a descriptive phenomenological study that included ten …

Background: Family and friends are key providers of care for people living with a long-term
neurological condition. Neurological conditions are a significant global contributor to …

Introduction International guidelines recommend that health care clinicians communicate
with people with MND and their family members about non-invasive ventilation (NIV) and …

Background Amyotrophic lateral sclerosis (ALS) has long been considered a pure motor
neurodegenerative disease. However, now, extra-motor manifestations such as cognitive …

L'épidémie COVID a bouleversé l'organisation du suivi et de la prise en charge des malades
atteints de sclérose latérale amyotrophique (SLA). Les téléconsultations (TLC) se sont …

Abstract/sammanfattning Bakgrund: Palliativ vård ges till personer som lider av en obotlig
sjukdom. Palliativ vård skall ges utifrån fyra hörnstenar som innefattar symtomlindring, stöd …