The state of patient-reported outcome measures for pediatric patients with inherited retinal disease

K Selvan, MF Abalem, GD Lacy, A Vincent… - Ophthalmology and …, 2022 - Springer
Patient-reported outcome measures (PROMs) are questionnaires that assess health
outcomes meaningful to the patient. PROMs have multiple applications, such as supporting …

School performance and undetected and untreated visual problems in schoolchildren in Ireland; a population-based cross-sectional study

S Harrington, PA Davison, V O'Dwyer - Irish Educational Studies, 2022 - Taylor & Francis
This study explored the association between children's vision and their school academic
progress as reported by parents/guardians. Participants were 1,612 schoolchildren (722 6-7 …

Development and evaluation of the quality of life scale for children with visual impairments in China

J Liu, R Evans, Y Wang, B Hu, Y Tong, S Li… - Frontiers in …, 2022 - frontiersin.org
Background Visual impairments related to non-correctable vision loss, including blindness
and low vision, have been consistently shown to lower a person's health-related quality of …

Capturing the experiences of patients with inherited optic neuropathies: a systematic review of patient-reported outcome measures (PROMs) and qualitative studies

BS Chen, T Galus, S Archer, V Tadić, M Horton… - Graefe's Archive for …, 2022 - Springer
Purpose To identify and comprehensively evaluate studies capturing the experience of
individuals affected by an inherited optic neuropathy (ION), focusing on patient-reported …

[PDF][PDF] Vision-related Questionnaires Developed for the Paediatric Population From Birth to 18 Years Old: A Scoping Review of the Characteristics.

AH Chen, NFA Bakar, NG Congdon… - Malaysian Journal of …, 2022 - medic.upm.edu.my
ABSTRACT A questionnaire is fast becoming a key instrument in screening, diagnosis,
treatment, and rehabilitation in health care and eye health care. Scholars have long debated …