A systematic review of caregiver coping strategies in amyotrophic lateral sclerosis and frontotemporal dementia

J Caga, MC Kiernan, O Piguet - Journal of Geriatric …, 2022 - journals.sagepub.com
Caregivers of patients diagnosed with amyotrophic lateral sclerosis (ALS) and
frontotemporal dementia (FTD) often experience distressing symptoms related to their …

The role of specialty palliative care for amyotrophic lateral sclerosis

A Sethi, E Everett, A Mehta, J Besbris… - American Journal of …, 2022 - journals.sagepub.com
Amyotrophic Lateral Sclerosis (ALS) is a progressive and incurable neurodegenerative
disease resulting in the loss of motor neurons, eventually leading to death. ALS results in …

Reflections of family caregivers and health professionals on the everyday challenges of caring for persons with amyotrophic lateral sclerosis and cognitive …

LK Olesen, K Cour, H With… - Palliative care and …, 2022 - journals.sagepub.com
Aims and objectives: To explore reflections of family caregivers and health professionals
regarding the challenges involved in caring for persons with amyotrophic lateral sclerosis …

Embedded palliative care for amyotrophic lateral sclerosis: a pilot program and lessons learned

K Fahrner-Scott, C Zapata, DL O'Riordan… - Neurology: Clinical …, 2022 - AAN Enterprises
Background and Objectives Palliative care (PC) is recommended for people with
amyotrophic lateral sclerosis (ALS), but there is scant literature about how to best provide …

Advance care planning in amyotrophic lateral sclerosis (ALS): study protocol for a qualitative longitudinal study with persons with ALS and their family carers

I Vandenbogaerde, R Miranda, JL De Bleecker… - BMJ open, 2022 - bmjopen.bmj.com
Introduction Amyotrophic lateral sclerosis (ALS) is an incurable motor neuron degenerative
disease that has rapid progression and is associated with cognitive impairment. For people …

Facing amyotrophic lateral sclerosis under lockdown: The experiences of minors

I Testoni, L Palazzo, T Tosatto, L Sani… - Facing Death: Familial …, 2022 - emerald.com
Purpose: The purpose of this study is to assess the effect of social isolation of minors with a
parent or grandparent suffering from amyotrophic lateral sclerosis (ALS) and to determine …

The Complexities of Prescribing Assistive Equipment at the End of Life—Patient and Caregivers' Perspectives

DD Morgan, E Willis, K Sweet, P Roe, J Rabaçal… - Healthcare, 2022 - mdpi.com
Ongoing participation in valued and essential everyday activities remains a priority for
people with advanced disease. This study sought to understand factors influencing patients …

Quality of life among relatives of patients with amyotrophic lateral sclerosis: A prospective and longitudinal study

BJ Larsson, A Ozanne, K Nordin… - Palliative & Supportive …, 2022 - cambridge.org
ObjectiveRelatives are often central in caring for patients with amyotrophic lateral sclerosis
(ALS), involving considerable physical, emotional, and social challenges. The aim of this …

[PDF][PDF] The Complexities of Prescribing Assistive Equipment at the End of Life—Patient and Caregivers' Perspectives. Healthcare 2022, 10, 1005

DD Morgan, E Willis, K Sweet, P Roe, J Rabaçal… - 2022 - academia.edu
Ongoing participation in valued and essential everyday activities remains a priority for
people with advanced disease. This study sought to understand factors influencing patients …

Perceptions of people with motor neurone disease, families and HSCPs: a literature review

H Brewah, K Borrett, N Tavares… - British Journal of …, 2022 - magonlinelibrary.com
Motor neurone disease or amyotrophic lateral sclerosis is a rapidly progressive terminal
neurodegenerative condition caused by degeneration of the upper and lower motor …