A systematic review of caregiver coping strategies in amyotrophic lateral sclerosis and frontotemporal dementia
J Caga, MC Kiernan, O Piguet - Journal of Geriatric …, 2022 - journals.sagepub.com
Caregivers of patients diagnosed with amyotrophic lateral sclerosis (ALS) and
frontotemporal dementia (FTD) often experience distressing symptoms related to their …
frontotemporal dementia (FTD) often experience distressing symptoms related to their …
The role of specialty palliative care for amyotrophic lateral sclerosis
Amyotrophic Lateral Sclerosis (ALS) is a progressive and incurable neurodegenerative
disease resulting in the loss of motor neurons, eventually leading to death. ALS results in …
disease resulting in the loss of motor neurons, eventually leading to death. ALS results in …
Reflections of family caregivers and health professionals on the everyday challenges of caring for persons with amyotrophic lateral sclerosis and cognitive …
LK Olesen, K Cour, H With… - Palliative care and …, 2022 - journals.sagepub.com
Aims and objectives: To explore reflections of family caregivers and health professionals
regarding the challenges involved in caring for persons with amyotrophic lateral sclerosis …
regarding the challenges involved in caring for persons with amyotrophic lateral sclerosis …
Embedded palliative care for amyotrophic lateral sclerosis: a pilot program and lessons learned
K Fahrner-Scott, C Zapata, DL O'Riordan… - Neurology: Clinical …, 2022 - AAN Enterprises
Background and Objectives Palliative care (PC) is recommended for people with
amyotrophic lateral sclerosis (ALS), but there is scant literature about how to best provide …
amyotrophic lateral sclerosis (ALS), but there is scant literature about how to best provide …
Advance care planning in amyotrophic lateral sclerosis (ALS): study protocol for a qualitative longitudinal study with persons with ALS and their family carers
I Vandenbogaerde, R Miranda, JL De Bleecker… - BMJ open, 2022 - bmjopen.bmj.com
Introduction Amyotrophic lateral sclerosis (ALS) is an incurable motor neuron degenerative
disease that has rapid progression and is associated with cognitive impairment. For people …
disease that has rapid progression and is associated with cognitive impairment. For people …
Facing amyotrophic lateral sclerosis under lockdown: The experiences of minors
Purpose: The purpose of this study is to assess the effect of social isolation of minors with a
parent or grandparent suffering from amyotrophic lateral sclerosis (ALS) and to determine …
parent or grandparent suffering from amyotrophic lateral sclerosis (ALS) and to determine …
The Complexities of Prescribing Assistive Equipment at the End of Life—Patient and Caregivers' Perspectives
Ongoing participation in valued and essential everyday activities remains a priority for
people with advanced disease. This study sought to understand factors influencing patients …
people with advanced disease. This study sought to understand factors influencing patients …
Quality of life among relatives of patients with amyotrophic lateral sclerosis: A prospective and longitudinal study
BJ Larsson, A Ozanne, K Nordin… - Palliative & Supportive …, 2022 - cambridge.org
ObjectiveRelatives are often central in caring for patients with amyotrophic lateral sclerosis
(ALS), involving considerable physical, emotional, and social challenges. The aim of this …
(ALS), involving considerable physical, emotional, and social challenges. The aim of this …
[PDF][PDF] The Complexities of Prescribing Assistive Equipment at the End of Life—Patient and Caregivers' Perspectives. Healthcare 2022, 10, 1005
DD Morgan, E Willis, K Sweet, P Roe, J Rabaçal… - 2022 - academia.edu
Ongoing participation in valued and essential everyday activities remains a priority for
people with advanced disease. This study sought to understand factors influencing patients …
people with advanced disease. This study sought to understand factors influencing patients …
Perceptions of people with motor neurone disease, families and HSCPs: a literature review
Motor neurone disease or amyotrophic lateral sclerosis is a rapidly progressive terminal
neurodegenerative condition caused by degeneration of the upper and lower motor …
neurodegenerative condition caused by degeneration of the upper and lower motor …