Grief literacy: A call to action for compassionate communities

LJ Breen, D Kawashima, K Joy, S Cadell, D Roth… - Death studies, 2022 - Taylor & Francis
The compassionate communities movement challenges the notion that death and dying
should be housed within clinical and institutional contexts, and works to normalize …

[HTML][HTML] Listening to caregivers' voices: the informal family caregiver burden of caring for chronically ill bedridden elderly patients

J Mamom, H Daovisan - … Journal of Environmental Research and Public …, 2022 - mdpi.com
The informal family caregiver burden (IFCB) for chronically ill bedridden elderly patients
(CIBEPs) is a major issue worldwide. It is a significant challenge due to the ongoing …

Optimum models of hospice at home services for end-of-life care in England: a realist-informed mixed-methods evaluation

C Butler, P Wilson, V Abrahamson, R Mikelyte… - Health Services and …, 2022 - ora.ox.ac.uk
Background Many people prefer to die at home when the time comes. Hospice at home
services aim to support patients to achieve this. A range of hospice at home services exist; …

Physicians' perceptions of patient participation and the involvement of family caregivers in the palliative care pathway

AS Tarberg, M Thronaes, BJ Landstad… - Health …, 2022 - Wiley Online Library
Introduction Patient participation is essential for quality palliative care, and physicians play a
crucial role in promoting participation. This study explores physicians' perceptions of …

The dying parent and dependent children: a nationwide survey of hospice and community palliative care support services

J Cockle-Hearne, E Reed, J Todd… - BMJ Supportive & …, 2022 - spcare.bmj.com
Background Annually, across the world a substantial number of dependent children
experience the death of a parent through life-limiting illness. Without support, this has long …

Rural Hispanic/Latino cancer patients' perspectives on facilitators, barriers, and suggestions for advance care planning: A qualitative study

E Ko, AJ Keeney, D Higgins, N Gonzalez… - Palliative & Supportive …, 2022 - cambridge.org
Objective Hispanic/Latinos living in rural areas have limited healthcare resources, including
palliative and hospice care. Moreover, little is known about advance care planning (ACP) …

Re-conceptualizing bereavement care practices: Insights gained from service providers

GL Lee, WY Chee, I Teo, C Ng… - OMEGA-Journal of …, 2022 - journals.sagepub.com
The management and delivery of bereavement care and support services present practical
challenges. A national-level, qualitative study was conducted to examine the current …

Prolonged grief and bereavement supports within a Caregiver Population who Transition through a Palliative Care Program in British Columbia, Canada

EX Wu, A Collins, S Briggs… - American Journal of …, 2022 - journals.sagepub.com
Objective: To determine the prevalence of prolonged grief disorder (PGD), and self-reported
resilience among bereaved caregivers within a palliative care program that serves a large …

“It was terrible, I didn't sleep for two years”: A mixed methods exploration of sleep and its effects among family caregivers of in-home hospice patients at end-of-life

LT Starr, KT Washington, MV McPhillips… - Palliative …, 2022 - journals.sagepub.com
Background: Due to overnight caregiving demands; exacerbation of high rates of anxiety,
depression, and distress; and inadequate support, millions of family caregivers of patients …

What are these strange things called emotions? An analysis of service interactions in the funeral industry: Issues, implications, and future research directions

B Korai, C Ouellet, J Cloutier - Services Marketing Quarterly, 2022 - Taylor & Francis
The role played by emotions in funeral services, as in unwanted services in general, is still
largely unexplored in the literature. While no theoretical attempt has been made yet to shed …