Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease associated
with progressive dysphagia, dysarthria, extremity weakness, and dyspnea. Although there …

Amyotrophic Lateral Sclerosis (ALS) is a rare neurogenerative disorder whose median
survival ranges from 2 to 4 years after symptomatic onset. Therefore, the global Quality of …

BackgroundFamily carers of people living with motor neurone disease (MND) face
continuous changes and losses during the progression of the disease, impacting on their …

Objectives This systematic review considers interventions designed to improve the
psychological well-being (PWB) of carers of people with motor neuron disease (MND) using …

Although the progressive clinical trajectory of motor neurone disease (MND) is widely
understood, multiple challenges remain preventing optimal end-of-life care for this …

Objectives To explore factors associated with care burden and the self-described positive
aspects of caring for a person living with amyotrophic lateral sclerosis (ALS) over time …

This study employs a qualitative methodology to explore the effects of the pandemic on the
lives of ALS patients and their caregivers. It aims to understand whether and how online self …

Abstract Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease
that affects motor neurons, the nerve cells in the brain and the spinal cord that enable …

Aim The aim of the study was to qualitatively investigate the adolescents' need for
professional support when a parent has amyotrophic lateral sclerosis (ALS)–from the …

Objectives Patients with kidney failure receiving maintenance dialysis are a particularly
important population and carry a heavy disease burden. However, evidence related to …