Time to Change How We Measure Quality of Life and Well-Being in Autism: A Systematic Review

K Simpson, J Paynter, M Westerveld… - Review Journal of …, 2024 - Springer
This review examines methods used to report on the QoL and/or well-being of autistic
people. A search of four databases (June 2023) identified 256 studies that reported on the …

Autistic well-being: A scoping review of scientific studies from a neurodiversity-affirmative perspective

P Najeeb, L Quadt - Neurodiversity, 2024 - journals.sagepub.com
Background Historically, autism research has focused on the overrepresentation of physical
and mental health problems and decreased psychological well-being in autistic people …

What's in a name? The costs and benefits of a formal autism diagnosis

S Fletcher-Watson - Autism, 2024 - journals.sagepub.com
2 Autism 00 (0) implication (so less needful of gatekeeping), and when well-delivered they
should be individually tailored rather than designed for a diagnostic category. In addition, it …

'Most people have no idea what autism is': Unpacking autism disclosure using social media analysis

C Edwards, AMA Love, SC Jones, RY Cai… - …, 2024 - journals.sagepub.com
Autism disclosure can be a complicated decision that autistic people experience. Positive
outcomes can include feelings of acceptance and support, but negative outcomes can …

Diagnosis as a new beginning not an end: A participatory photovoice study on navigating an autism diagnosis in adulthood

E Cage, M Botha, L McDevitt, KN King, L Biscoe… - …, 2024 - journals.sagepub.com
Autistic people diagnosed in adulthood often report that the experience can be life-
changing, but there are issues with the diagnostic pathway. Few studies consider the views …

Autistic adults' perspectives and experiences of diagnostic assessments that include play across the lifespan

E Pritchard-Rowe, C de Lemos, K Howard… - Autism, 2024 - journals.sagepub.com
Play is often included in autism diagnostic assessments. These tend to focus on 'deficits' and
non-autistic interpretation of observable behaviours. In contrast, a neurodiversity-affirmative …

Adult Autism Research Priorities and Conceptualization in Computing Research: Invitation to Co-Lead with Autistic Adults

DZM Ramirez, G Barbareschi, C Holloway - ACM Transactions on …, 2024 - dl.acm.org
Autism research is primarily targeted toward children and at normalizing autistic traits. We
conducted a literature review of computing research on adult autism, focusing on identifying …

The childbearing and mental health experiences of autistic mothers: a systematic review

O Hernández González… - International Journal …, 2024 - Taylor & Francis
It is recognized that diagnostic rates of autism in women is increasing and with this, areas
such as pregnancy and childbearing need to be viewed through a neurodivergent lense. As …

The meaning of autistic movements

S Petty, A Ellis - Autism, 2024 - journals.sagepub.com
Movement of the body is an essential way to characterise autism, according to diagnostic
criteria. However, qualifying descriptions of what autistic movements are, their functions and …

Consolidating a Model of Camouflaging in Autism Spectrum: An Integrative Systematic Review

J Nel - 2024 - open.uct.ac.za
Background: Research into social 'camouflaging'(hiding difference) in Autism Spectrum (AS)
is gaining momentum. Camouflaging is one explanatory facet for individuals reaching …