[HTML][HTML] Psychosocial and lifestyle impacts of spontaneous coronary artery dissection: A quantitative study
BM Murphy, MC Rogerson, MR Le Grande… - Plos one, 2024 - journals.plos.org
Introduction Recent studies suggest that acute myocardial infarction due to spontaneous
coronary artery dissection (SCAD) carries significant psychosocial burden. This survey …
coronary artery dissection (SCAD) carries significant psychosocial burden. This survey …
[HTML][HTML] The socioeconomic burden of spinal muscular atrophy in Saudi Arabia: a cross-sectional pilot study
KM Alotaibi, M Alsuhaibani, KS Al-Essa… - Frontiers in Public …, 2024 - frontiersin.org
Background Spinal muscular atrophy (SMA) is a rare debilitating condition with a significant
burden for patients and society. However, little is known about how it affects Saudi Arabia's …
burden for patients and society. However, little is known about how it affects Saudi Arabia's …
[HTML][HTML] Exploring the support needs of Australian parents of young children with Usher syndrome: a qualitative thematic analysis
L Johansen, F O'Hare, ER Shepard, LN Ayton… - Orphanet journal of rare …, 2024 - Springer
Background Advancements in genetic testing have led to Usher syndrome now being
diagnosed at a much earlier age than in the past, enabling the provision of early intervention …
diagnosed at a much earlier age than in the past, enabling the provision of early intervention …
A Social Media Blueprint–Understanding What Makes the Optimal Social Media Account for Paediatric Surgical Families
A Patel, CA Wilson, J Davidson, JY Lam… - Journal of Pediatric …, 2024 - Elsevier
Background Social media is one of the most common sources of information for parents
seeking information on their child's health. The purpose of this study was to better …
seeking information on their child's health. The purpose of this study was to better …
Psychosocial issues and coping strategies in families affected by long‐chain fatty acid oxidation disorders
M Thiel, SF Garbade, S Rosenbaum‐Fabian… - JIMD …, 2024 - Wiley Online Library
Long‐chain fatty acid oxidation disorders (lcFAODs) are associated with a high disease
burden due to both the risk of metabolic decompensation as well as chronic, partly …
burden due to both the risk of metabolic decompensation as well as chronic, partly …
Perceived benefits of patient support groups and their format for people with an implantable cardioverter defibrillator
KH Sanders, K Carver, E Eggleton, PJ Pugh, L Walker… - Heart & Lung, 2024 - Elsevier
Background Support groups for people with Implantable Cardioverter Defibrillators (ICDs)
are widely used, however, it is not clear what people with ICDs gain from a support group or …
are widely used, however, it is not clear what people with ICDs gain from a support group or …
The TTP specialist nurse: an advocate for patients and professionals
J Bradbury, J Bell - British Journal of Nursing, 2024 - magonlinelibrary.com
Thrombotic thrombocytopenic purpura (TTP) is a rare and life-threatening blood disorder
with a mortality rate of over 90% if left untreated, multiple long-term complications for …
with a mortality rate of over 90% if left untreated, multiple long-term complications for …