Daily experiences of mothers caring for children with Prader-Willi syndrome (PWS) are
largely unknown and unvoiced. Knowledge of PWS has generally focused on pathology of …

There is an increased interest from both researchers and knowledge users to partner in
research to generate meaningful research ideas, implement research projects, and …

Discussion To understand the current state and future needs for optimizing pediatric
pulmonary health in the community, we developed a framework of 4 research principles …

Background While patient and family engagement in research has become a widespread
practice, meaningful and authentic engagement remains a challenge. In the READYorNot™ …

Mothers' experiences of caring for children with Prader-Willi Syndrome (PWS) is largely
unknown. With no treatment for PWS, parents undertake (extra) ordinary care practices to …

Focus on patient and public involvement and engagement (PPIE) is increasing in health
policy and research governance. PPIE is considered by some to be a democratic right, and …

Aims: Provide guidance for engaging military veterans in various research teams to help
overcome veterans' lack of trust in research. Methods: We draw from our combined …

Occupational therapy research has a long and varied history of involving patients, public,
and communities in research as advisors, collaborators, and co-researchers. In Canada …

Background Involvement of young partners by experience in research is on the rise and
becoming expected practice. However, literature on how to promote equitable and …

Purpose Children with cancer require specific therapeutic guidance. Parents prefer physical
therapy close to home, while pediatric physical therapists (PPTs) working in the community …