The main aims in the care of individuals with amyotrophic lateral sclerosis (ALS) are to
minimize morbidity and maximize quality of life. Although no cure exists for ALS, supportive …

Palliative care is an approach to the care of patients and families facing progressive and
chronic illnesses that focuses on the relief of suffering due to physical symptoms …

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease, leading to
death within an average of 2–3 years. A cure is yet to be found, and a single disease …

Background: There is growing awareness that different terminal diseases translate into
different family caregiver experiences, and the palliative and supportive care needs of these …

The care and management of patients with ALS should always be patient focused, with
attention to holistic and emotional aspects of well-being. It is the patient who ultimately …

Background Caregiver burden affects the physical, psychological and emotional well-being
of the caregiver. The purpose of this analysis was to describe an informal caregiver cohort …

Conclusion If you are considering implementing a web-based survey and are worried about
validity (compared to paper-based surveys) I have some simple advice for you: relax. There …

Background: Family caregivers of people with Motor Neurone Disease/Amyotrophic Lateral
Sclerosis, an incurable, mostly rapidly fatal neurodegenerative disease, face many …

Background: Palliative care standards and policies recommend that bereavement support
be provided to family caregivers, yet uncertainty surrounds whether support currently offered …

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease associated
with progressive dysphagia, dysarthria, extremity weakness, and dyspnea. Although there …