Motor neurone disease/amyotrophic lateral sclerosis (ALS) is a progressive
neurodegenerative disorder with no known cure, where death is usually secondary to …

Abstract Context Amyotrophic Lateral Sclerosis (ALS) is a fatal neurodegenerative disease,
associated with impaired quality of life for patients and caregivers. As treatment is largely …

Background: COVID-19 has taken many lives worldwide and due to this, millions of persons
are in grief. When the grief process lasts longer than 6 months, the person is in risk of …

Objective: This study explores the supportive needs of informal caregivers of people with
amyotrophic lateral sclerosis (ALS) in Switzerland. Method: We conducted semi-structured …

The purpose of this mixed methods systematic review was to identify factors associated with
anticipatory grief, post-death grief, and prolonged grief in informal carers of people living …

Background: Studies on the experiences of consumers with Motor Neurone Disease
Associations at end of life and bereavement are lacking, and their role and capability within …

Informal caregivers provide the major part of care for persons with amyotrophic lateral
sclerosis (ALS), a terminal neurodegenerative disease. Apart from providing care, informal …

Although the progressive clinical trajectory of motor neurone disease (MND) is widely
understood, multiple challenges remain preventing optimal end-of-life care for this …

Background: There are few illnesses as disruptive as motor neurone disease, a fatal
neurodegenerative condition, where diagnosis introduces a clinical narrative of inevitable …

Background: Due to medical advances and an increasingly ageing population, the number
of people living with a serious illness is rising. This has major implications for the burden on …