Mendelian randomisation (MR) studies allow a better understanding of the causal effects of
modifiable exposures on health outcomes, but the published evidence is often hampered by …

From a research perspective, the interest in biobanking continues to intensify. Governments
and industry have invested heavily in biobanks, as exemplified by initiatives like the United …

Aim: Introducing data sharing practices into the genomic research arena has challenged the
current mechanisms established to protect rights of individuals and triggered policy …

Trust may be important in shaping public attitudes to genetics and intentions to participate in
genomics research and big data initiatives. As such, we examined trust in data sharing …

Background Organoid technology is emerging rapidly as a valuable tool for precision
medicine, particularly in the field of Cystic Fibrosis (CF). However, biobank storage and use …

Biobanks have been heralded as essential tools for translating biomedical research into
practice, driving precision medicine to improve pathways for global healthcare treatment and …

Abstract Plain English summary Biobanks are collections of donations of biological material
(DNA, cells, tissue etc.) and related data which are very valuable for research into human …

Objectives: The necessity for biobanks to share their resources with third parties poses
potential risks to public trust and the intention to participate in genetic research. We explore …

Genomic medicine is expanding from a focus on diagnosis at the patient level to prevention
at the population level given the ongoing under-ascertainment of high-risk and actionable …

Combining datasets into larger and separate datasets is becoming increasingly common,
and personal identifiers are often removed in order to maintain participant anonymity. Views …