Context Although specialized pediatric palliative care (SPPC) teams increasingly provide
home-based care, the evidence of its impact has not yet been systematically evaluated …

Although child-centred care is increasingly referred to within the nursing literature, a clear
definition of child-centred care and clarity around the concept is yet to be achieved. The …

Background: Despite being a core domain of palliative care, primary data on spiritual and
existential concerns has rarely been collected among children with life-limiting and life …

Background: There is no validated outcome measure for use in children's palliative care
outside sub-Saharan Africa. Stakeholders must be involved in the development of such …

Background Pediatric palliative care (PPC) seeks to enhance the quality of life (QoL) for both
children and their families. While most studies within PPC have focused on the ill child's …

Background Self-reported health data from children with life-limiting conditions is rarely
collected. To improve acceptability and feasibility of child and family-centred outcome …

The patient's perspective is an essential component of understanding the individual
experience of suffering in children with palliative needs, but it is a perspective that is often …

Introduction Effective communication in pediatric palliative cancer care is an important
aspect of practice to enhance patient-and family-centered care, and to optimize decision …

Background There is a lack of knowledge regarding siblings' experiences of being a brother
or sister of a child with a life-threatening or life-limiting condition. Siblings' perspectives are …

Background: There is a growing evidence-base underpinning implementation of person-
centred outcome measures into adult palliative care. However evidence on how best to …