Concerns about genetic privacy affect individuals' willingness to accept genetic testing in
clinical care and to participate in genomics research. To learn what is already known about …

Human biospecimens have played a crucial role in scientific and medical advances.
Although the ethical and policy issues associated with biospecimen research have long …

Background The secondary use of deidentified but not anonymized patient data is a
promising approach for enabling precision medicine and learning health care systems. In …

Use of university students' educational data for learning analytics has spurred a debate
about whether and how to provide students with agency regarding data collection and use …

Background Limited information is available on biomarker (s) for triple-negative breast
cancer (TNBC) that can address the higher incidence and aggressiveness of TNBC in …

We report results from a large survey of public attitudes regarding genomic database
governance. Prior surveys focused on the context of academic-sponsored biobanks, framing …

PURPOSE Representativeness in acute leukemia clinical research is essential for achieving
health equity. The National Cancer Institute's mandate for Comprehensive Cancer Centers …

The purpose of this study was to explore and compare different countries in what motivated
research participants' decisions whether to share their de-identified data. We investigated …

Commentators are concerned that broad consent may not provide biospecimen donors with
sufficient information regarding possible future research uses of their tissue. We surveyed …

Background Limited research has been conducted on explanations and understandings of
biobanking for future genomic research in African contexts with low literacy and limited …