A home for patient-oriented research
All too often, what's important to patients differs from what health researchers want to study.
A recent review in the field of kidney dialysis, for example, showed that only one in five …
A recent review in the field of kidney dialysis, for example, showed that only one in five …
“Small Wins” for those with Lyme Disease in Canada: Patients in an Embodied Health Movement
M Cox, M Levesque - Zoonotic Diseases, 2024 - mdpi.com
Simple Summary Many Lyme disease patients are struggling to navigate a healthcare
system that increasingly dismisses their condition. Patient organizations have arisen to …
system that increasingly dismisses their condition. Patient organizations have arisen to …
Patient engagement in research; benefits, challenges, importance, and implications
C Ivany, T Hudson, P Schneider, H Farrukh, M Swinton… - medRxiv, 2023 - medrxiv.org
Objective Patient engagement (PE) and patient-oriented research have begun to reshape
the thought process behind conducting research with the aim of maximizing the relevance of …
the thought process behind conducting research with the aim of maximizing the relevance of …
[图书][B] Long-term perceived engagement and research priorities among chronic kidney disease stakeholders: a qualitative study
M Elliott - 2018 - search.proquest.com
Despite increasing engagement of patients and other stakeholders in the research process,
little is known about its impact, particularly over the long term. In this qualitative descriptive …
little is known about its impact, particularly over the long term. In this qualitative descriptive …
[PDF][PDF] La transmission des connaissances et l'amélioration de la santé et des soins pour les migrants au Canada: Quelle est la responsabilité des bailleurs de fonds et …
Lisa Merry RN PhD Sandra Pelaez PhD Au Canada, les besoins en soins de santé des
migrants, c'est-à-dire les personnes nées dans un autre pays, surtout des réfugiés, des …
migrants, c'est-à-dire les personnes nées dans un autre pays, surtout des réfugiés, des …
Knowledge translation and better health and health care for migrants in Canada: What is the responsibility of health funders and researchers?
Lisa Merry RN PhD Sandra Pelaez PhD In Canada, migrants—that is, anyone born in
another country, and especially refugees, asylum seekers, temporary foreign workers, and …
another country, and especially refugees, asylum seekers, temporary foreign workers, and …
For patient involvement in clinical research
LC Loh - CMAJ, 2017 - Can Med Assoc
As a public health physician, the involvement of key stakeholders in planning, research, and
evaluation of policies and programs has long been well understood—even if it faces …
evaluation of policies and programs has long been well understood—even if it faces …
Response to “Against patient involvement in clinical research”
KL Patrick - CMAJ, 2017 - Can Med Assoc
Professor McGregor urges me to resist displaying hubris1—which is defined as “excessive
pride or self-confidence; arrogance.” Perhaps Professor McGregor misunderstands my …
pride or self-confidence; arrogance.” Perhaps Professor McGregor misunderstands my …