Communication, information, and the parent–caregiver relationship in neonatal intensive care units: a review of the literature

SB Fazio, L Dany, S Dahan, B Tosello - Archives de pediatrie, 2022 - Elsevier
This literature review focuses on the neonatal context. It provides an update of knowledge
on the psychosocial consequences and communication needs expressed by parents. It …

I could have used a lot more help than I had: A qualitative systematic review and synthesis of families' experiences of paediatric brain tumour and schooling

K Young, A Bowers, K Prain… - British Journal of …, 2022 - Wiley Online Library
Background Brain tumours are the most common and fatal of all solid tumours for children
and adolescents. The effects of the tumour and treatment (chemotherapy, radiation, and/or …

Attending to child agency in paediatric palliative care consultations: Adults' use of tag questions directed to the child

K Ekberg, S Ekberg, L Weinglass… - Sociology of Health …, 2022 - Wiley Online Library
Children's agency in their own lives is increasingly recognised as important, including within
paediatric health care. The issue of acknowledging child agency is complex in the context of …

What hinders and helps in the end‐of‐life decision‐making process for children: Parents' and physicians' views

IH Zaal‐Schuller, R Geurtzen, DL Willems… - Acta …, 2022 - Wiley Online Library
Aim To investigate the main factors which facilitate or hinder end‐of‐life decision‐making
(EoLDM) in neonates and children. Methods A qualitative inductive, thematic analysis was …

Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care

S Ekberg, A Herbert, K Johns, G Tarrant… - Palliative …, 2020 - journals.sagepub.com
Background: Effective communication is a cornerstone of quality paediatric palliative care.
Families report struggling, however, to know what to discuss, with whom, and when …

Forming clinician-parent therapeutic alliance for children with severe neurologic impairment

JF Bogetz, A Trowbridge, H Lewis, D Jonas… - Hospital …, 2022 - publications.aap.org
OBJECTIVES Care for children with severe neurologic impairment (SNI) often involves
complex medical decision-making where therapeutic alliance between clinicians and …

Family meetings in paediatric palliative care: an integrative review

N Bradford, M Rolfe, S Ekberg, G Mitchell… - BMJ Supportive & …, 2021 - spcare.bmj.com
Objective Our aim was to synthesise the available evidence surrounding the structure,
processes and outcomes of family meetings in the paediatric palliative care literature …

Navigating stress in the pediatric intensive care unit among parents of children with severe neurological impairment

JF Bogetz, J Yu, E Oslin, KS Barton, P Joyce… - Journal of Pain and …, 2023 - Elsevier
Context Children with severe neurological impairment (SNI) make up nearly 50% of
pediatric intensive care unit (PICU) admissions, yet little is known about their family …

Parents' responses to prognostic disclosure at diagnosis of a child with a high‐risk brain tumor: Analysis of clinician‐parent interactions and implications for clinical …

M Bluebond‐Langner, N Hall, K Vincent… - Pediatric blood & …, 2021 - Wiley Online Library
Background Previous studies have found that parents of children with cancer desire more
prognostic information than is often given even when prognosis is poor. We explored in …

Association between nurse-child communication and family caregivers' global ratings to hospital: a retrospective study

Y Weng, C Pei, Q Liu, Y Chen, Z Zhang, XL Feng… - Journal of Pediatric …, 2024 - Elsevier
Purpose Effective nurse-child communication is a fundamental aspect of delivering pediatric
nursing care. Family caregivers' global ratings to hospital are considered a proxy-reported …