Blueprint for harmonising unstandardised disease registries to allow federated data analysis: prepare for the future

JA Kroes, AT Bansal, E Berret, N Christian… - ERJ open …, 2022 - Eur Respiratory Soc
Real-world evidence from multinational disease registries is becoming increasingly
important not only for confirming the results of randomised controlled trials, but also for …

Adult severe asthma registries: a global and growing inventory

B Cushen, MS Koh, TN Tran, N Martin… - Pragmatic and …, 2023 - Taylor & Francis
Aim The International Severe Asthma Registry (ISAR; http://isaregistries. org/) uses
standardised variables to enable multi-country and adequately powered research in severe …

[HTML][HTML] Gulf asthma diagnosis and management in adults: expert review and recommendations

N Al Busaidi, A Alweqayyan, A Al Zaabi… - The Open Respiratory …, 2022 - ncbi.nlm.nih.gov
The prevalence and incidence of asthma are increasing globally because of genetic and
environmental influences. Prevalence of asthma in the Gulf has been reported to range from …

Providing a framework for evaluation disease registry and health outcomes Software: Updating the CIPROS checklist

F Shafiee, M Sarbaz, P Marouzi, AB Yazdipour… - Journal of Biomedical …, 2024 - Elsevier
Background and aims Properly designed and implemented registry systems play an
important role in improving health outcomes and reducing care costs, and can provide a true …

Biological therapy-associated adverse reactions in asthma: analysis of reporting to the Portuguese pharmacovigilance system

J Sousa, L Taborda-Barata… - Expert Opinion on Drug …, 2020 - Taylor & Francis
Objectives: Biological drugs have been successfully tested in asthma, especially in the most
severe forms of the disease. The goal of this study was to characterize the safety profile of …

[HTML][HTML] The Korean Severe Asthma Registry (KoSAR): real world research in severe asthma

SH Kim, H Lee, SY Park, SY Park… - The Korean Journal …, 2022 - ncbi.nlm.nih.gov
Severe asthma constitutes a serious health burden with significant morbidity and
socioeconomic costs. The development and introduction of new biologics targeting type 2 …

[HTML][HTML] GEMA 5.3. Spanish guideline on the management of asthma

VP Moral, I Alobid, CÁ Rodríguez, MB Aparicio… - Open Respiratory …, 2023 - Elsevier
Abstract The Spanish Guideline on the Management of Asthma, better known by its acronym
in Spanish GEMA, has been available for more than 20 years. Twenty-one scientific …

[HTML][HTML] Mapping digital public health interventions among existing digital technologies and internet-based interventions to maintain and improve population health in …

L Maaß, K Angoumis, M Freye, CC Pan - Journal of Medical Internet …, 2024 - jmir.org
Background The rapid progression and integration of digital technologies into public health
have reshaped the global landscape of health care delivery and disease prevention. In …

Real‑life Cretan asthma registry focused on severe asthma: On behalf of 'The Cretan registry of the use of Biologics in Severe Asthma'

KM Antoniou, M Bolaki… - Experimental and …, 2021 - spandidos-publications.com
Asthma diagnosis and management remains a challenging task for the medical community.
The aim of the present study was to present the functional and inflammatory profiles of …

Multidisciplinary measuring of maturity and readiness in national digital public health systems: The digital public health maturity index

L Maaß - 2024 - media.suub.uni-bremen.de
The rapid digitalization of health systems has brought unprecedented opportunities and
challenges in public health. There is a critical need for tools to comprehensively evaluate the …