Transparency, trust and minimizing burden to increase recruitment and retention in trials: a systematic review

P Natale, V Saglimbene, M Ruospo… - Journal of Clinical …, 2021 - Elsevier
Objective To describe patient perspectives on recruitment and retention in clinical trials.
Study Design and Setting Systematic review of qualitative studies that reported the …

Facilitators, challenges, and messaging strategies for Hispanic/Latino populations participating in Alzheimer's disease and related dementias clinical research: a …

HA Massett, AK Mitchell, L Alley… - Journal of …, 2021 - content.iospress.com
Alzheimer's disease and Alzheimer's disease-related dementias (AD/ADRD)
disproportionally affect Hispanic and Latino populations, yet Hispanics/Latinos are …

[HTML][HTML] Digital education for the deployment of artificial intelligence in health care

FK Malerbi, LF Nakayama, R Gayle Dychiao… - Journal of medical …, 2023 - jmir.org
Artificial Intelligence (AI) represents a significant milestone in health care's digital
transformation. However, traditional health care education and training often lack digital …

Ethical considerations in clinical trials for disorders of consciousness

MJ Young, YG Bodien, BL Edlow - Brain Sciences, 2022 - mdpi.com
As the clinical trial landscape for patients with disorders of consciousness (DoC) expands,
consideration of associated ethical challenges and opportunities is of ever-increasing …

Frequency and format of clinical trial results dissemination to patients: a survey of authors of trials indexed in PubMed

S Schroter, A Price, M Malički, T Richards, M Clarke - Bmj Open, 2019 - bmjopen.bmj.com
Objective Dissemination of research findings is central to research integrity and promoting
discussion of new knowledge and its potential for translation into practice and policy. We …

[PDF][PDF] Citizen science models in health research: an Australian commentary

A Borda, K Gray, L Downie - Online Journal of Public Health …, 2019 - ojphi.jmir.org
This qualitative review explores how established citizen science models can inform and
support meaningful engagement of public in health research in Australia. In particular, with …

Recruitment and retention in clinical trials in chronic kidney disease: report from national workshops with patients, caregivers and health professionals

P Natale, T Gutman, M Howell, K Dansie… - Nephrology Dialysis …, 2020 - academic.oup.com
Background Slow recruitment and poor retention jeopardize the reliability and statistical
power of clinical trials, delaying access to effective interventions and increasing costs, as …

Providing trial results to participants in phase III pragmatic effectiveness RCTs: a scoping review

H Bruhn, EJ Cowan, MK Campbell, L Constable… - Trials, 2021 - Springer
Background There is an ethical imperative to offer the results of trials to those who
participated. Existing research highlights that less than a third of trials do so, despite the …

Leveraging artificial intelligence to summarize abstracts in lay language for increasing research accessibility and transparency

C Shyr, RW Grout, N Kennedy, Y Akdas… - Journal of the …, 2024 - academic.oup.com
Objective Returning aggregate study results is an important ethical responsibility to promote
trust and inform decision making, but the practice of providing results to a lay audience is not …

Correlates of attendance at community engagement meetings held in advance of bio-behavioral research studies: A longitudinal, sociocentric social network study in …

B Kakuhikire, EN Satinsky, C Baguma… - PLoS …, 2021 - journals.plos.org
Background Community engagement is central to the conduct of health-related research
studies as a way to determine priorities, inform study design and implementation, increase …