Transparency, trust and minimizing burden to increase recruitment and retention in trials: a systematic review
P Natale, V Saglimbene, M Ruospo… - Journal of Clinical …, 2021 - Elsevier
Objective To describe patient perspectives on recruitment and retention in clinical trials.
Study Design and Setting Systematic review of qualitative studies that reported the …
Study Design and Setting Systematic review of qualitative studies that reported the …
Facilitators, challenges, and messaging strategies for Hispanic/Latino populations participating in Alzheimer's disease and related dementias clinical research: a …
HA Massett, AK Mitchell, L Alley… - Journal of …, 2021 - content.iospress.com
Alzheimer's disease and Alzheimer's disease-related dementias (AD/ADRD)
disproportionally affect Hispanic and Latino populations, yet Hispanics/Latinos are …
disproportionally affect Hispanic and Latino populations, yet Hispanics/Latinos are …
[HTML][HTML] Digital education for the deployment of artificial intelligence in health care
FK Malerbi, LF Nakayama, R Gayle Dychiao… - Journal of medical …, 2023 - jmir.org
Artificial Intelligence (AI) represents a significant milestone in health care's digital
transformation. However, traditional health care education and training often lack digital …
transformation. However, traditional health care education and training often lack digital …
Ethical considerations in clinical trials for disorders of consciousness
As the clinical trial landscape for patients with disorders of consciousness (DoC) expands,
consideration of associated ethical challenges and opportunities is of ever-increasing …
consideration of associated ethical challenges and opportunities is of ever-increasing …
Frequency and format of clinical trial results dissemination to patients: a survey of authors of trials indexed in PubMed
Objective Dissemination of research findings is central to research integrity and promoting
discussion of new knowledge and its potential for translation into practice and policy. We …
discussion of new knowledge and its potential for translation into practice and policy. We …
[PDF][PDF] Citizen science models in health research: an Australian commentary
This qualitative review explores how established citizen science models can inform and
support meaningful engagement of public in health research in Australia. In particular, with …
support meaningful engagement of public in health research in Australia. In particular, with …
Recruitment and retention in clinical trials in chronic kidney disease: report from national workshops with patients, caregivers and health professionals
P Natale, T Gutman, M Howell, K Dansie… - Nephrology Dialysis …, 2020 - academic.oup.com
Background Slow recruitment and poor retention jeopardize the reliability and statistical
power of clinical trials, delaying access to effective interventions and increasing costs, as …
power of clinical trials, delaying access to effective interventions and increasing costs, as …
Providing trial results to participants in phase III pragmatic effectiveness RCTs: a scoping review
H Bruhn, EJ Cowan, MK Campbell, L Constable… - Trials, 2021 - Springer
Background There is an ethical imperative to offer the results of trials to those who
participated. Existing research highlights that less than a third of trials do so, despite the …
participated. Existing research highlights that less than a third of trials do so, despite the …
Leveraging artificial intelligence to summarize abstracts in lay language for increasing research accessibility and transparency
Objective Returning aggregate study results is an important ethical responsibility to promote
trust and inform decision making, but the practice of providing results to a lay audience is not …
trust and inform decision making, but the practice of providing results to a lay audience is not …
Correlates of attendance at community engagement meetings held in advance of bio-behavioral research studies: A longitudinal, sociocentric social network study in …
B Kakuhikire, EN Satinsky, C Baguma… - PLoS …, 2021 - journals.plos.org
Background Community engagement is central to the conduct of health-related research
studies as a way to determine priorities, inform study design and implementation, increase …
studies as a way to determine priorities, inform study design and implementation, increase …