A systematic review of barriers and facilitators to and interventions for proxy decision-making by family carers of people with dementia

K Lord, G Livingston, C Cooper - International Psychogeriatrics, 2015 - cambridge.org
Background: Relatives of people with dementia report that proxy decision-making is difficult
and distressing. We systematically reviewed the literature about barriers and facilitators to …

The facilitated values history: helping surrogates make authentic decisions for incapacitated patients with advanced illness

LP Scheunemann, RM Arnold… - American journal of …, 2012 - atsjournals.org
Many patients who develop incapacitating illness have not expressed clear treatment
preferences. Therefore, surrogate decision makers are asked to make judgments about what …

Shared decision making in ICUs: an American college of critical care medicine and American thoracic society policy statement

AA Kon, JE Davidson, W Morrison, M Danis… - Critical care …, 2016 - journals.lww.com
Objectives: Shared decision making is endorsed by critical care organizations; however,
there remains confusion about what shared decision making is, when it should be used, and …

I don't want to be the one saying 'we should just let him die': intrapersonal tensions experienced by surrogate decision makers in the ICU

Y Schenker, M Crowley-Matoka, D Dohan… - Journal of General …, 2012 - Springer
BACKGROUND Although numerous studies have addressed external factors associated
with difficulty in surrogate decision making, intrapersonal sources of tension are an …

The General Comment on Article 12 of the Convention on the Rights of Persons with Disabilities: A roadmap for equality before the law

A Arstein-Kerslake, E Flynn - The International Journal of Human …, 2016 - Taylor & Francis
This article examines General Comment No. 1 on the right to equal recognition before the
law adopted by the United Nations Committee on the Rights of Persons with Disabilities …

Physician communication with families in the ICU: evidence-based strategies for improvement

KG Schaefer, SD Block - Current opinion in critical care, 2009 - journals.lww.com
Physician communication with families in the ICU: evidence-b... : Current Opinion in Critical
Care Physician communication with families in the ICU: evidence-based strategies for …

How to discuss goals of care with patients

SM Dunlay, JJ Strand - Trends in cardiovascular medicine, 2016 - Elsevier
Effective communication with patients and their caregivers continues to form the basis of a
constructive clinician–patient relationship and is critical to provide patient-centered care …

A randomized controlled trial of strategies to improve family members' preparedness for surrogate decision-making

MJ Green, LJ Van Scoy, AJ Foy… - American Journal of …, 2018 - journals.sagepub.com
Objective: To evaluate 2 strategies for preparing family members for surrogate decision-
making. Design: A 2× 2 factorial, randomized controlled trial testing whether:(1) …

The ethics of deprescribing in older adults

E Reeve, P Denig, SN Hilmer, R Ter Meulen - Journal of bioethical inquiry, 2016 - Springer
Deprescribing is the term used to describe the process of withdrawal of an inappropriate
medication supervised by a clinician. This article presents a discussion of how the Four …

'It'sa tough decision': a qualitative study of proxy decision-making for research involving adults who lack capacity to consent in UK

V Shepherd, K Hood, M Sheehan, R Griffith… - Age and …, 2019 - academic.oup.com
Background Research into dementia and other conditions connected with cognitive
impairments is essential but conducting research with populations who lack capacity to …