A systematic review of transition readiness in youth with chronic disease

M Varty, LL Popejoy - Western Journal of Nursing Research, 2020 - journals.sagepub.com
The transition of chronically ill adolescents and young adults to adult health care is poorly
managed, leading to poor outcomes due to insufficient disease knowledge and a lack of …

Transition readiness measures for adolescents and young adults with chronic health conditions: a systematic review

S Parfeniuk, K Petrovic, PL MacIsaac… - Journal of Transition …, 2020 - degruyter.com
Background Transition from pediatric to adult healthcare for adolescents with chronic health
conditions has emerged as a critical period influencing health outcomes. Suitable transition …

Stressors in teens with type 1 diabetes and their parents: immediate and long-term implications for transition to self-management

AL Ersig, E Tsalikian, J Coffey, JK Williams - Journal of pediatric nursing, 2016 - Elsevier
Purpose Teens with Type 1 diabetes and their parents experience every day and illness-
related stress; however, understanding of how these stressors relate to the transition to …

SPN position statement: Transition of pediatric patients into adult care

CL Betz - Journal of Pediatric Nursing, 2017 - pubmed.ncbi.nlm.nih.gov
SPN Position Statement: Transition of Pediatric Patients Into Adult Care SPN Position
Statement: Transition of Pediatric Patients Into Adult Care J Pediatr Nurs. 2017 Jul-Aug;35:160-164 …

Family management affecting transition readiness and quality of life of Chinese children and young people with chronic diseases

N Sheng, J Ma, W Ding… - Journal of Child Health …, 2018 - journals.sagepub.com
Transition from pediatric to adult health care is a key milestone for children and young
people (CYP) with chronic conditions. Family management (FM) and self-management are …

Pediatric sickle cell disease: past successes and future challenges

ER Meier, A Rampersad - Pediatric research, 2017 - nature.com
Once a fatal disease of childhood, more than 95% of patients born today with sickle cell
disease (SCD) in developed countries are expected to survive into adulthood, largely …

Parental Involvement in the Transition from Paediatric to Adult Care for Youth with Chronic Illness: A Scoping Review of the North American Literature

B Badour, A Bull, AA Gupta, RM Mirza… - … Journal of Pediatrics, 2023 - Wiley Online Library
With medical advancements and improvements in medical technology, an increasing
number of children with chronic conditions survive into adulthood. There is accordant …

Biopsychosocial factors related to transition among adolescents and young adults with sickle cell disease: A systematic review

KE Rea, GK Cushman, T Santee, L Mee - Critical Reviews in Oncology …, 2021 - Elsevier
It is critical to support adolescents and young adults (AYAs) with sickle cell disease (SCD)
during transition to adult healthcare. We provide a systematic review of literature related to …

Pediatric to adult transition literature: scoping review and rheumatology research prioritization survey results

N Bitencourt, E Lawson, J Bridges… - The Journal of …, 2022 - jrheum.org
The transition from pediatric to adult care is the focus of growing research. It is important to
identify how to direct future research efforts for maximum effect. Our goals were to perform a …

Perceptions of a self-management intervention for adolescents with sickle cell disease.

LE Crosby, NE Joffe, KM Kidwell, O Harry… - Clinical Practice in …, 2022 - psycnet.apa.org
Objective: Individuals with sickle cell disease (SCD) are at increased risk for complications
from their disease during their adolescent and young adult (AYA) years. The risk of morbidity …