Abstract Background and Methods: This paper reviews the current capacity of personnel in
enabling access to assistive technology (AT) as well as the systems and processes within …

Epidermolysis Bullosa (EB) is a group of rare genetic disorders resulting in skin fragility and
other symptoms. Commissioned by DEBRA International and funded by DEBRA Norway …

Increased awareness, interest and use of assistive technology (AT) presents substantial
opportunities for many citizens to become, or continue being, meaningful participants in …

The area of assistive technology has a long history of technological ingenuity and
innovation. In order to ensure that the benefits of assistive technology are equitably …

Background Little is known about the benefits, and barriers and facilitators to providing
psychosocial support to caregivers to a loved one with a rare disease. Objective The aim of …

Abstract Background & Objective Epidermolysis bullosa (EB) is the term used for a group of
genetic skin fragility disorders. For those living with EB, pain represents a constant …

This guideline was designed to provide service providers and users with an evidence‐
based set of current best practice guidelines for people and their families and carers, living …

Objectives The nominal group technique (NGT) allows stakeholders to directly generate
items for needs assessment surveys. The objective was to demonstrate the use of NGT …

Aims: Epidermolysis Bullosa (EB) is a rare genetic disorder characterised by recurrent skin
blistering. Wound care and nursing are critical to everyday lives of EB patients. The aim of …

Background Epidermolysis bullosa (EB) comprises a group of genetically and clinically
heterogeneous diseases characterized by skin fragility and blistering. EB is incurable, and …