A disease is considered rare if it has a low prevalence. It is estimated that around 400 million
people worldwide have a rare disease, including 15 million in Brazil. Consequently, it …

Patient activism organizations are formed around and seek legitimacy via both biological
and biographical identities (Fassin, in: Theory Cult Soc 26 (5): 44–60, 2009). In the case of …

This article examines how chikungunya virus disease is epidemiologically and politically
invisible in Brazil, unlike other diseases related to the Aedes Aegypti mosquito, such as Zika …

Health policy and academic discourses on rare diseases and people with rare conditions
frequently employ terms such as 'low prevalence'and 'unique'to characterize the smallness …

The judicialization of health is a controversial topic. Some authors see it as the source of a
series of problems in health policies that span from the disruption of waiting queues to …

Esta dissertação trata do trabalho do tempo de Gal, uma mulher idosa que se autoqualifica
como uma ativista velha vira-lata de rua, mãe de um adulto com deficiência, de origem …

Este artigo discute a incorporação dos derivados da Cannabis sativa para uso terapêutico
no Sistema Único de Saúde brasileiro (SUS). Mesmo com mudanças regulatórias nos …

The category of life-threatening and/or chronically debilitating 'rare disease'has been
afforded increasing importance within both national and global health policies over the past …

Los intereses que me llevan a estudiar el padecimiento en torno al significado social de la
enfermedad1 versan alrededor primero de, interrogantes que se generaron a partir de una …

Este artigo aborda o acesso a um medicamento de alto custo para pessoas com uma
doença rara a síndrome de Berardinelli que vivem, sobretudo, no Estado do Rio Grande …