Measuring the willingness to share personal health information: a systematic review

M Benevento, G Mandarelli, F Carravetta… - Frontiers in Public …, 2023 - frontiersin.org
Background In the age of digitalization and big data, personal health information is a key
resource for health care and clinical research. This study aimed to analyze the determinants …

Global public perceptions of genomic data sharing: what shapes the willingness to donate DNA and health data?

A Middleton, R Milne, MA Almarri, S Anwer… - The American Journal of …, 2020 - cell.com
Analyzing genomic data across populations is central to understanding the role of genetic
factors in health and disease. Successful data sharing relies on public support, which …

[HTML][HTML] Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review

A Cumyn, JF Ménard, A Barton, R Dault… - Journal of Medical …, 2023 - jmir.org
Background: Secondary use of health data has reached unequaled potential to improve
health systems governance, knowledge, and clinical care. Transparency regarding this …

Public willingness to participate in personalized health research and biobanking: A large-scale Swiss survey

C Brall, C Berlin, M Zwahlen, KE Ormond, M Egger… - PloS one, 2021 - journals.plos.org
This paper reports survey findings on the Swiss public's willingness, attitudes, and concerns
regarding personalized health research participation by providing health information and …

[HTML][HTML] Incentivizing the sharing of healthcare data in the AI Era

A Panagopoulos, T Minssen, K Sideri, H Yu… - Computer Law & …, 2022 - Elsevier
This article contributes to the policy dialogue about how to govern healthcare data in the AI
era and how to incentivize patients to share their data. Existing approaches to data-sharing …

[HTML][HTML] The (digital) medium of mobility is the message: Examining the influence of e-scooter mobile app perceptions on e-scooter use intent

R Ratan, K Earle, S Rosenthal, VHH Chen… - Computers in Human …, 2021 - Elsevier
The present research examines how perceptions of e-scooter mobile apps (ie, a
communication technology) influence intent to use e-scooters (ie, a transportation …

Willingness to donate genomic and other medical data: results from Germany

TH Voigt, V Holtz, E Niemiec, HC Howard… - European Journal of …, 2020 - nature.com
This paper reports findings from Germany-based participants in the “Your DNA, Your Say”
study, a collaborative effort among researchers in more than 20 countries across the world to …

Citizens' attitudes, knowledge, and educational needs in the field of omics sciences: a systematic literature review

GE Calabrò, M Sassano, A Tognetto, S Boccia - Frontiers in Genetics, 2020 - frontiersin.org
Background: The huge development of omics sciences is changing the classical medical
approach and making new technologies available. In this context, education of citizens is …

[HTML][HTML] Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review

R Baines, S Stevens, D Austin, K Anil… - Journal of Medical …, 2024 - jmir.org
Background International advances in information communication, eHealth, and other digital
health technologies have led to significant expansions in the collection and analysis of …

Australian public perspectives on genomic data storage and sharing: Benefits, concerns and access preferences

F Lynch, Y Meng, S Best, I Goranitis… - European Journal of …, 2023 - Elsevier
Diagnostic genomic sequencing generates unprecedented amounts of data. In addition to its
primary use, this data could be used for a wide range of secondary purposes, including …