Measuring the willingness to share personal health information: a systematic review
M Benevento, G Mandarelli, F Carravetta… - Frontiers in Public …, 2023 - frontiersin.org
Background In the age of digitalization and big data, personal health information is a key
resource for health care and clinical research. This study aimed to analyze the determinants …
resource for health care and clinical research. This study aimed to analyze the determinants …
Global public perceptions of genomic data sharing: what shapes the willingness to donate DNA and health data?
Analyzing genomic data across populations is central to understanding the role of genetic
factors in health and disease. Successful data sharing relies on public support, which …
factors in health and disease. Successful data sharing relies on public support, which …
[HTML][HTML] Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review
Background: Secondary use of health data has reached unequaled potential to improve
health systems governance, knowledge, and clinical care. Transparency regarding this …
health systems governance, knowledge, and clinical care. Transparency regarding this …
Public willingness to participate in personalized health research and biobanking: A large-scale Swiss survey
This paper reports survey findings on the Swiss public's willingness, attitudes, and concerns
regarding personalized health research participation by providing health information and …
regarding personalized health research participation by providing health information and …
[HTML][HTML] Incentivizing the sharing of healthcare data in the AI Era
This article contributes to the policy dialogue about how to govern healthcare data in the AI
era and how to incentivize patients to share their data. Existing approaches to data-sharing …
era and how to incentivize patients to share their data. Existing approaches to data-sharing …
[HTML][HTML] The (digital) medium of mobility is the message: Examining the influence of e-scooter mobile app perceptions on e-scooter use intent
The present research examines how perceptions of e-scooter mobile apps (ie, a
communication technology) influence intent to use e-scooters (ie, a transportation …
communication technology) influence intent to use e-scooters (ie, a transportation …
Willingness to donate genomic and other medical data: results from Germany
This paper reports findings from Germany-based participants in the “Your DNA, Your Say”
study, a collaborative effort among researchers in more than 20 countries across the world to …
study, a collaborative effort among researchers in more than 20 countries across the world to …
Citizens' attitudes, knowledge, and educational needs in the field of omics sciences: a systematic literature review
GE Calabrò, M Sassano, A Tognetto, S Boccia - Frontiers in Genetics, 2020 - frontiersin.org
Background: The huge development of omics sciences is changing the classical medical
approach and making new technologies available. In this context, education of citizens is …
approach and making new technologies available. In this context, education of citizens is …
[HTML][HTML] Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review
Background International advances in information communication, eHealth, and other digital
health technologies have led to significant expansions in the collection and analysis of …
health technologies have led to significant expansions in the collection and analysis of …
Australian public perspectives on genomic data storage and sharing: Benefits, concerns and access preferences
Diagnostic genomic sequencing generates unprecedented amounts of data. In addition to its
primary use, this data could be used for a wide range of secondary purposes, including …
primary use, this data could be used for a wide range of secondary purposes, including …