[HTML][HTML] Implementation of electronic informed consent in biomedical research and stakeholders' perspectives: systematic review

E De Sutter, D Zaçe, S Boccia, ML Di Pietro… - Journal of medical …, 2020 - jmir.org
Background Informed consent is one of the key elements in biomedical research. The
introduction of electronic informed consent can be a way to overcome many challenges …

Inform the uninformed: improving online informed consent reading with an AI-powered Chatbot

Z Xiao, TW Li, K Karahalios, H Sundaram - Proceedings of the 2023 CHI …, 2023 - dl.acm.org
Informed consent is a core cornerstone of ethics in human subject research. Through the
informed consent process, participants learn about the study procedure, benefits, risks, and …

Informed consent for online research—is anybody reading?: assessing comprehension and individual differences in readings of digital consent forms

C Geier, RB Adams, KM Mitchell… - Journal of Empirical …, 2021 - journals.sagepub.com
Informed consent is an important part of the research process; however, some participants
either do not read or skim the consent form. When participants do not read or comprehend …

Guest editorial: Ethical issues in social media research

G Samuel, E Buchanan - Journal of Empirical Research on …, 2020 - journals.sagepub.com
The past 25 years have produced countless volumes, papers, workshops, and regulatory
responses (Buchanan, 2017). Numerous scholars and professional bodies have published …

Survey consent to administrative data linkage: five experiments on wording and format

A Jäckle, J Burton, MP Couper… - Journal of Survey …, 2023 - academic.oup.com
To maximize the value of the data while minimizing respondent burden, survey data are
increasingly linked to administrative records. Record linkage often requires the informed …

Some researchers wear yellow pants, but even fewer participants read consent forms: Exploring and improving consent form reading in human subjects research.

BD Douglas, EL McGorray, PJ Ewell - Psychological methods, 2021 - psycnet.apa.org
Though consent forms include important information, those experienced with behavioral
research often observe that participants do not carefully read consent forms. Three studies …

Problematizing consent: searching genetic genealogy databases for law enforcement purposes

G Samuel, D Kennett - New Genetics and Society, 2021 - Taylor & Francis
Genetic genealogy databases have become particularly attractive to law enforcement
agencies, especially in the United States (US), which have started to employ genealogists to …

The participant's voice: crowdsourced and undergraduate participants' views toward ethics consent guidelines

NSJ Stirling, MKT Takarangi - Ethics & Behavior, 2024 - Taylor & Francis
The informed consent process presents challenges for psychological trauma research (eg
Institutional Review Board [IRB] apprehension). While previous research documents …

Forschungsethik und wissenschaftliche Integrität: Herausforderungen und Chancen für Forschung in und mit digitalen Medien

D Schlütz, AF Zillich - Handbuch Digitale Medien und Methoden, 2023 - Springer
Dieser Beitrag identifiziert und diskutiert grundlegende ethische Herausforderungen bei der
Forschung in und mit digitalen Methoden und gibt Empfehlungen, wie Forscher* innen damit …

Words, words, words: participants do not read consent forms in communication research

D Parfenova, A Niftulaeva, CT Carr - Communication Research …, 2024 - Taylor & Francis
Informed consent is an essential part of conducting human subjects research; but its utility is
dependent on participants actually reading the consent forms provided. This research …