[HTML][HTML] Interventions to improve functioning, participation, and quality of life in children with visual impairment: a systematic review

EBM Elsman, M Al Baaj, GHMB van Rens… - survey of …, 2019 - Elsevier
Visual impairment in childhood often has life-long implications. To aim for the highest levels
of functioning, participation, and quality of life and to ensure children's well-being, children …

[HTML][HTML] Children's participation rights and the role of pediatric healthcare teams: A critical review

D Koller, S Espin, A Indar, A Oulton… - Journal of Pediatric …, 2024 - Elsevier
Aim A critical review examined how childrens participation rights as represented in the
United Nations Convention on the Rights of the Child inform the work of pediatric teams in …

[HTML][HTML] Use of Netnography to Understand GoFundMe® Crowdfunding Profiles Posted for Individuals and Families of Children with Osteogenesis Imperfecta

A Tsimicalis, M Gasse, M Morand, F Rauch - Healthcare, 2022 - mdpi.com
Osteogenesis imperfecta (OI) is a rare genetic disorder associated with low bone density
and increased bone fragility. OI can lead to a variety of supportive and medical care needs; …

[HTML][HTML] Bridging the gap: parent and child perspectives of living with cerebral visual impairments

T Goodenough, A Pease, C Williams - Frontiers in human …, 2021 - frontiersin.org
Cerebral Visual Impairment (CVI) is an umbrella term which includes abnormalities in visual
acuity, or contrast sensitivity or colour; ocular motility; visual field and the conscious and …

[HTML][HTML] Quality of life and participation of children with visual impairment: Comparison with population reference scores

EBM Elsman, M Koel, RMA van Nispen… - … & visual science, 2021 - iovs.arvojournals.org
Purpose: The purpose of this study was to investigate quality of life and participation in
children aged 3 to 17 years with visual impairment (VI) compared to reference groups and …

Temporal trends in the epidemiology of childhood severe visual impairment and blindness in the UK

LJ Teoh, AL Solebo, JS Rahi - British Journal of Ophthalmology, 2023 - bjo.bmj.com
Background/aims Understanding temporal trends in childhood visual disability is necessary
for planning and evaluating clinical services and health policies. We investigate the …

[HTML][HTML] Measuring the quality of life of visually impaired children: first stage psychometric evaluation of the novel VQoL_CYP instrument

V Tadić, A Cooper, P Cumberland, G Lewando-Hundt… - PLoS …, 2016 - journals.plos.org
Purpose To report piloting and initial validation of the VQoL_CYP, a novel age-appropriate
vision-related quality of life (VQoL) instrument for self-reporting by children with visual …

'Come willing to learn': experiences of parents advocating for their children with severe vision impairments in Australian mainstream education

M Cain, M Fanshawe, P Goodwin - International Journal of …, 2021 - Taylor & Francis
This article presents the findings from interviews with thirteen parents of students with severe
vision impairment who attend mainstream schools in Queensland, Australia. Participants …

Quality of life, functioning and participation of children and adolescents with visual impairment: A scoping review

M Lanza, F Incagli, C Ceccato, ME Reffo… - Research in …, 2024 - Elsevier
Background Vision has a key role in children's neuromotor, cognitive and social
development. Children with visual impairment attain developmental milestones at later …

Management of children and young people with vision impairment: diagnosis, developmental challenges and outcomes

S Keil, A Fielder, J Sargent - Archives of disease in childhood, 2017 - adc.bmj.com
Vision impairment (VI) has a significant impact on an individual's ability to engage with
everyday tasks. Severe early-onset VI presents different challenges to adult onset visual loss …