Indigenous peoples and local communities as partners in the sequencing of global eukaryotic biodiversity
The aim to sequence, catalog, and characterize the genomes of all of Earth's eukaryotic
biodiversity is the shared mission of many ongoing large-scale biodiversity genomics …
biodiversity is the shared mission of many ongoing large-scale biodiversity genomics …
The Amphibian Genomics Consortium: advancing genomic and genetic resources for amphibian research and conservation
Amphibians represent a diverse group of tetrapods, marked by deep divergence times
between their three systematic orders and families. Studying amphibian biology through the …
between their three systematic orders and families. Studying amphibian biology through the …
Indigenous peoples' rights in data: a contribution toward indigenous research sovereignty
M Hudson, SR Carroll, J Anderson… - Frontiers in Research …, 2023 - frontiersin.org
Indigenous Peoples' right to sovereignty forms the foundation for advocacy and actions
toward greater Indigenous self-determination and control across a range of domains that …
toward greater Indigenous self-determination and control across a range of domains that …
Extending the CARE Principles from tribal research policies to benefit sharing in genomic research
Indigenous Peoples have historically been targets of extractive research that has led to little
to no benefit. In genomics, such research not only exposes communities to harms and risks …
to no benefit. In genomics, such research not only exposes communities to harms and risks …
[HTML][HTML] Disruptive data: How access and benefit-sharing discourses structured ideas and decisions during the Convention on Biological Diversity negotiations over …
BEB Kreiken, BJMB Arts - Global Environmental Change, 2024 - Elsevier
In 2016, negotiations of the Convention on Biological Diversity on access and benefit-
sharing policies were shaken up by the emergence of digital sequence information (DSI) as …
sharing policies were shaken up by the emergence of digital sequence information (DSI) as …
Aotearoa genomic data repository: an āhuru mōwai for taonga species sequencing data
B Te Aika, L Liggins, C Rye, EO Perkins… - Molecular Ecology …, 2023 - Wiley Online Library
Abstract The Aotearoa Genomic Data Repository (AGDR) is an initiative to provide a secure
within‐nation option for the storage, management and sharing of non‐human genomic data …
within‐nation option for the storage, management and sharing of non‐human genomic data …
Compliance with the Nagoya protocol in the southern african development community
J Knight, E Flack-Davison, S Engelbrecht… - South African Journal of …, 2023 - Elsevier
Abstract The Nagoya Protocol (2010) provides an international framework for access and
benefits sharing of genetic resources. In the Southern African Development Community …
benefits sharing of genetic resources. In the Southern African Development Community …
Decolonizing botanical gardens
K Leonard - Qualitative Research Journal, 2024 - emerald.com
Purpose The purpose of this article is to untangle the influence of Linda Tuhiwai Smith's
Decolonizing Methodologies on botanical gardens, particularly in the context of …
Decolonizing Methodologies on botanical gardens, particularly in the context of …
Advancing stroke genetics in Hawai 'i and the Pacific Islands
SC Brown, CAT Galang, M Kana'iaupuni… - Frontiers in …, 2023 - frontiersin.org
Stroke, the second leading cause of death worldwide, has partially heritable risk. Genome-
wide association studies (GWAS) of stroke continue to identify increasing genetic risk loci …
wide association studies (GWAS) of stroke continue to identify increasing genetic risk loci …
[HTML][HTML] Investigating the Roles and Responsibilities of Institutional Signing Officials After Data Sharing Policy Reform for Federally Funded Research in the United …
J Baek, J Lawson, V Rahimzadeh - JMIR Formative Research, 2024 - formative.jmir.org
Background: New federal policies along with rapid growth in data generation, storage, and
analysis tools are together driving scientific data sharing in the United States. At the same …
analysis tools are together driving scientific data sharing in the United States. At the same …