Indigenous peoples and local communities as partners in the sequencing of global eukaryotic biodiversity

AM Mc Cartney, MA Head, KS Tsosie, B Sterner… - npj Biodiversity, 2023 - nature.com
The aim to sequence, catalog, and characterize the genomes of all of Earth's eukaryotic
biodiversity is the shared mission of many ongoing large-scale biodiversity genomics …

The Amphibian Genomics Consortium: advancing genomic and genetic resources for amphibian research and conservation

TA Kosch, M Torres-Sánchez, HC Liedtke, K Summers… - BMC genomics, 2024 - Springer
Amphibians represent a diverse group of tetrapods, marked by deep divergence times
between their three systematic orders and families. Studying amphibian biology through the …

Indigenous peoples' rights in data: a contribution toward indigenous research sovereignty

M Hudson, SR Carroll, J Anderson… - Frontiers in Research …, 2023 - frontiersin.org
Indigenous Peoples' right to sovereignty forms the foundation for advocacy and actions
toward greater Indigenous self-determination and control across a range of domains that …

Extending the CARE Principles from tribal research policies to benefit sharing in genomic research

SR Carroll, R Plevel, LL Jennings, I Garba… - Frontiers in …, 2022 - frontiersin.org
Indigenous Peoples have historically been targets of extractive research that has led to little
to no benefit. In genomics, such research not only exposes communities to harms and risks …

[HTML][HTML] Disruptive data: How access and benefit-sharing discourses structured ideas and decisions during the Convention on Biological Diversity negotiations over …

BEB Kreiken, BJMB Arts - Global Environmental Change, 2024 - Elsevier
In 2016, negotiations of the Convention on Biological Diversity on access and benefit-
sharing policies were shaken up by the emergence of digital sequence information (DSI) as …

Aotearoa genomic data repository: an āhuru mōwai for taonga species sequencing data

B Te Aika, L Liggins, C Rye, EO Perkins… - Molecular Ecology …, 2023 - Wiley Online Library
Abstract The Aotearoa Genomic Data Repository (AGDR) is an initiative to provide a secure
within‐nation option for the storage, management and sharing of non‐human genomic data …

Compliance with the Nagoya protocol in the southern african development community

J Knight, E Flack-Davison, S Engelbrecht… - South African Journal of …, 2023 - Elsevier
Abstract The Nagoya Protocol (2010) provides an international framework for access and
benefits sharing of genetic resources. In the Southern African Development Community …

Decolonizing botanical gardens

K Leonard - Qualitative Research Journal, 2024 - emerald.com
Purpose The purpose of this article is to untangle the influence of Linda Tuhiwai Smith's
Decolonizing Methodologies on botanical gardens, particularly in the context of …

Advancing stroke genetics in Hawai 'i and the Pacific Islands

SC Brown, CAT Galang, M Kana'iaupuni… - Frontiers in …, 2023 - frontiersin.org
Stroke, the second leading cause of death worldwide, has partially heritable risk. Genome-
wide association studies (GWAS) of stroke continue to identify increasing genetic risk loci …

[HTML][HTML] Investigating the Roles and Responsibilities of Institutional Signing Officials After Data Sharing Policy Reform for Federally Funded Research in the United …

J Baek, J Lawson, V Rahimzadeh - JMIR Formative Research, 2024 - formative.jmir.org
Background: New federal policies along with rapid growth in data generation, storage, and
analysis tools are together driving scientific data sharing in the United States. At the same …