Family Information Management in the Context of Inherited Conditions: An Integrative Review

PJB Abad, LL Shah… - Journal of family …, 2024 - journals.sagepub.com
This review aimed to develop a framework to understand the process of information
management in families with inherited conditions. Electronic databases were searched for …

A scoping review of parents' disclosure of BRCA1/2 genetic alteration test results to underage children

M Dowling, N McNamara, JD Ivory, Y Hanhauser… - Patient Education and …, 2024 - Elsevier
Background Individuals with BRCA1/2 mutations have a notably higher than average
lifetime risk of developing cancer as adults. Some parents with BRCA1/2 mutations wish to …

The communication chain of genetic risk: analyses of narrative data exploring proband–provider and proband–family communication in hereditary breast and ovarian …

C Pedrazzani, M Aceti, R Schweighoffer… - Journal of personalized …, 2022 - mdpi.com
Low uptake of genetic services among members of families with hereditary breast and
ovarian cancer (HBOC) suggests limitations of proband-mediated communication of genetic …

Relatives from Hereditary breast and Ovarian Cancer and Lynch Syndrome families forgoing genetic testing: findings from the Swiss CASCADE cohort

M Sarki, C Ming, M Aceti, G Fink, S Aissaoui… - Journal of personalized …, 2022 - mdpi.com
Cascade genetic testing of relatives from families with pathogenic variants associated with
hereditary breast and ovarian cancer (HBOC) or Lynch syndrome (LS) has important …

Communicatively constructing resilience: Exploring family resilience in the experience of hereditary cancer

G Campbell‐Salome, S Chernichky‐Karcher… - Family …, 2025 - Wiley Online Library
Objective The goal was to explore how families communicate to cope with hereditary cancer
conditions and identify factors that may enhance resilience and recommended decision …

Communication about hereditary cancer risk to offspring: A systematic review of children's perspective

E Lima, MJ Esplen, F Martins, M Alves… - Psycho …, 2023 - Wiley Online Library
Objective The present review describes how children experience hereditary cancer risk
communication within the family. Methods Searches for studies between 1990 and 2020 on …

Family health beliefs and cascade genetic testing in Asian families with hereditary cancer risk:“Okay, now what?”

L Tran, JL Young, CM Barton, R Hodan… - Journal of Genetic …, 2024 - Wiley Online Library
The limited literature on Asian family communication of hereditary cancer risk and cascade
genetic testing for pathogenic variants (PVs) in BRCA1 and BRCA2 has reported that Asian …

[HTML][HTML] Modes of responsibility in disclosing cancer genetic test results to relatives: An analysis of Swiss and Korean narrative data

M Aceti, M Caiata-Zufferey, C Pedrazzani… - Patient Education and …, 2024 - Elsevier
Objective We examined how responsibility (the “duty to inform relatives about genetic testing
results”) is understood and enacted among Swiss and Korean women carrying BRCA1 or …

Multifamily interventions in the context of inherited genetic conditions: A scoping review

S Guerra, C Oliveira, C Seidi, L Sousa… - Journal of Family …, 2023 - Wiley Online Library
This scoping review sought to examine the existing literature on multifamily interventions
with families dealing with inherited genetic conditions. It also seeks to identify gaps in the …

Identifying and addressing the needs of caregivers of patients with cancer: evidence on interventions and the role of patient advocacy groups

R Dave, S Friedman, E Miller-Sonet, T Moore… - Future …, 2024 - Taylor & Francis
As the number of people with cancer increases, so does the number of informal caregivers.
These caregivers frequently have multiple unmet needs and experience numerous burdens …