Stressful experiences and coping strategies of parents of young children with Down syndrome: A qualitative study

P Celik, A Kara Uzun - Journal of Applied Research in …, 2023 - Wiley Online Library
Background Previous studies have focused mostly on the negative experiences of parents of
children with Down syndrome. We aimed to explore both the stressful experiences and …

Motivation in caregiving among mothers of children with intellectual and developmental disabilities in Iran: A qualitative study

SJ Hosseini, M Ramezani, F Ashrafzadeh, J Jamali - BMC pediatrics, 2024 - Springer
Background The motivation of caregivers plays a crucial role in the treatment, follow-up, and
care of children with intellectual and developmental disabilities. Previous studies have …

[HTML][HTML] Unsung Heroes: An Overview of the Informal Caregivers in the Gulf Cooperation Council–A Scoping Review and Thematic Analysis

Q Al Saffer, B Hariri, M Alhuseini, H Aljanoubi… - Saudi Journal of Health …, 2024 - karger.com
Abstract Introduction: Informal caregivers (ICs), usually family or friends providing unpaid
care, offer emotional and psychological support and personalized care and help navigate …

Preliminary assessment of the quality of life and daily burden of caregivers of persons with special needs: A questionnaire-based, cross-sectional survey

AL Cardoso, GO Silva-Junior, LF Bastos… - International Journal of …, 2023 - mdpi.com
Caregivers of persons with special needs (PSN) experience a variety of burdens and
elevated levels of stress and anxiety throughout their lives, leading to a physical …

[HTML][HTML] Effect of sleep disordered breathing severity in children with Down syndrome on parental wellbeing and social support

MBH Ong, MJ Davey, GM Nixon, LM Walter… - Sleep Medicine, 2024 - Elsevier
Introduction Sleep disorders, particularly sleep disordered breathing (SDB), are common in
children with Down syndrome (DS). We investigated the relationship between SDB severity …

Perceptions toward healthcare and dental care services among parents and caretakers of people with intellectual disability (PWID)—A questionnaire study

FN Mohd, AH Said, ASM Naji - Journal of International Society of …, 2023 - journals.lww.com
Aim and Objective: In Malaysia, there was lack of local evidence on the perception of
parents/caretakers of people with intellectual disabilities (PWID) about healthcare. Thus, this …

Exploring the barriers and expectations towards health care services among parents/caretakers of people with intellectual disability in Kuantan, Malaysia: A qualitative …

FN Mohd, AH Said, MS Ahmad… - … Society of Preventive …, 2023 - journals.lww.com
Aim: This study aims to explore the barriers and perceptions toward healthcare services
among parents or caretakers of people with intellectual disability, including the challenges …

Functional activity and communication-social ability of youths with developmental disabilities: a qualitative study

T Bania, R Lyri, F Ntatsiou, K Fousekis - Journal of Physical Therapy …, 2022 - jstage.jst.go.jp
[Purpose] To describe the functional activity and the communication-social ability levels of
youths with developmental disabilities and to determine whether demographic factors …

Social support, caregiver burden, quality of life and resilience among mothers with Down Syndrome children in East Kalimantan: a mixed method study

A Abiyoga, Z Abdul Mulud - Jurnal Intelek, 2024 - ir.uitm.edu.my
One effect of spending time with children who have Down syndrome is that parents may
spend less time interacting with their surroundings. Parents' resilience and quality of life will …

Editorial for the special issue 'Intellectual Disabilities and Mental health: Assessment and Treatment'

TL Bakken - International Journal of Developmental Disabilities, 2021 - Taylor & Francis
Today, it is accepted that people with intellectual disabilities (IDs) may develop the full range
of mental disorders (Bhaumik and Alexander 2020) and are in need of a range of mental …