[HTML][HTML] Assessing diversity in newborn genomic sequencing research recruitment: Race/ethnicity and primary spoken language variation in eligibility, enrollment, and …

JA Cakici, D Dimmock, S Caylor, M Gaughran… - Clinical Therapeutics, 2023 - Elsevier
Purpose Diagnostic genomic research has the potential to directly benefit participants. This
study sought to identify barriers to equitable enrollment of acutely ill newborns into a …

Factors associated with biomedical research participation within community‐based samples across 3 National Cancer Institute–designated cancer centers

NJ Barrett, EM Rodriguez, R Iachan, T Hyslop… - Cancer, 2020 - Wiley Online Library
Background Engaging diverse populations in biomedical research, including biospecimen
donation, remains a national challenge. This study examined factors associated with an …

Project PLACE: enhancing community and academic partnerships to describe and address health disparities

NJ Barrett, KL Ingraham, K Bethea, P Hwa-Lin… - Advances in cancer …, 2020 - Elsevier
Achieving cancer health equity is a national imperative. Cancer is the second leading cause
of death in the United States and in North Carolina (NC), where the disease …

The Asian American Network for Cancer Awareness, Research, and Training (AANCART)'s contributions toward reducing Asian American cancer health disparities …

MS Chen Jr, EA Chow, TT Nguyen - Cancer, 2018 - Wiley Online Library
BACKGROUND In 2000 and in 2 subsequent 5‐year cycles, the National Cancer Institute
funded grantees on a regional and national basis to address community needs for cancer …

Comparison of factors influencing the willingness to donate biospecimens among guardians of children with cancer and adult cancer patients

H Gao, B Cao, N Dang, S Gu, M Xu, B Ji, Y Shi… - Cancer …, 2022 - Wiley Online Library
Background This study examined and compared the attitudes and willingness of guardians
of children with cancer and adult cancer patients toward donating biospecimens and clinical …

“Something Good Has to Come Out of the Horror”: A Qualitative Examination of Cancer Survivors' Attitudes Towards Participation in Research During the First Year of …

L Fox, H Wylie, A Haire, S Green, J Kibaru… - Frontiers in Public …, 2021 - frontiersin.org
Introduction: The first year of the COVID-19 pandemic has been highly disruptive for people
with cancer. Furthermore, it has been shown that accrual to cancer trials dropped …

Community Engagement and the Ethical Governance of Canadian COVID-19 Biobanks

E Doerksen - 2023 - escholarship.mcgill.ca
Canadian COVID-19 biobanks are valuable resources for public health research on the
SARS-CoV-2 virus and will continue to be so in the coming years. As is true for all biobanks …

[PDF][PDF] Use of bodily tissues in research–Pacific perspectives from Dunedin, New Zealand

O Thompson, J Anderson, M Chen, G Haack… - Pacific Health …, 2020 - researchgate.net
Introduction: Donation of human tissue is essential for biomedical research to improve our
understanding of the causes and treatment of diseases. To facilitate this, researchers need …

[PDF][PDF] Towards an Inclusive Genomics

S Croy, M Ambegaokar, DG MacArthur - 2021 - populationgenomics.org.au
This document reviews the literature relevant to designing an inclusive approach to
genomics research. The Centre for Population Genomics (CPG) aims to build a genomic …

[HTML][HTML] Project PLACE: Population level approaches to cancer elimination: Enhancing academic and community partnerships to describe and address health …

NJ Barrett, KL Ingraham, K Bethea… - Advances in cancer …, 2020 - ncbi.nlm.nih.gov
Achieving cancer health equity is a national imperative. Cancer is the second leading cause
of death in the United States and in North Carolina (NC), where the disease …