Visual impairment, severe visual impairment, and blindness in children in Britain (BCVIS2): a national observational study

LJ Teoh, AL Solebo, JS Rahi, J Abbott… - The Lancet Child & …, 2021 - thelancet.com
Summary Background The WHO VISION 2020 global initiative against blindness, launched
in 2000, prioritised childhood visual disability by aiming to end avoidable childhood …

[HTML][HTML] The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature

DE McLaughlin, A Semrov, H Munshi, AJ Patel, J Rahi… - Eye, 2023 - nature.com
We present a novel comprehensive literature review of studies of the psychosocial
functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their …

[HTML][HTML] Vision-related tasks in children with visual impairment: a multi-method study

F Ghasemi Fard, H Mirzaie, SA Hosseini… - Frontiers in …, 2023 - frontiersin.org
Objective Functional Vision (FV) is vital for the successful growth of children with visual
impairment. However, tasks related to measuring FV have not been thoroughly studied for …

[HTML][HTML] The state of patient-reported outcome measures for pediatric patients with inherited retinal disease

K Selvan, MF Abalem, GD Lacy, A Vincent… - Ophthalmology and …, 2022 - Springer
Patient-reported outcome measures (PROMs) are questionnaires that assess health
outcomes meaningful to the patient. PROMs have multiple applications, such as supporting …

[HTML][HTML] This is me: A qualitative investigation of young people's experience of growing up with visual impairment

AO Robertson, V Tadić, JS Rahi - Plos one, 2021 - journals.plos.org
Background Childhood visual impairment (VI) has a profound impact on many aspects of
childhood and adolescence. This is well-documented in cross-sectional and/or quantitative …

[HTML][HTML] Individual, family, and environmental determinants of vision-related quality of life of children and young people with visual impairment

A Šemrov, V Tadić, M Cortina-Borja, JS Rahi… - Plos one, 2023 - journals.plos.org
Childhood visual impairment can have a significant impact on an individual's development.
To improve clinical care and develop appropriate psychosocial interventions of these …

Eye‐related quality of life and activities of daily living in pediatric retinoblastoma patients: A single‐center, non‐controlled, cross‐sectional analysis

J Wise, R Hayashi, T Wu, S Malone… - Pediatric Blood & …, 2023 - Wiley Online Library
Introduction Childhood retinoblastoma (RB) survivors are known to experience long‐term
morbidity; however, eye‐related quality of life (QoL), which may significantly impact activities …

Differences in self-rated Versus parent Proxy–Rated Vision-Related Quality of Life and Functional Vision of visually impaired children

AO Robertson, V Tadić, LA Horvat-Gitsels… - American Journal of …, 2021 - Elsevier
Purpose To investigate disagreement between children's self-reported vision-related quality
of life (VQoL) and functional vision (FV) and their parents' proxy-reports. Design Cross …

[HTML][HTML] Attitudes, experiences, and preferences of ophthalmic professionals regarding routine use of patient-reported outcome measures in clinical practice

AO Robertson, V Tadić, JS Rahi - PLoS One, 2020 - journals.plos.org
Background/Objectives Routine use of patient-reported outcome measures (PROMs) to
assess quality of health care systems is mandated in many countries and has been …

Distribution and associations of vision-related quality of life and functional vision of children with visual impairment

AO Robertson, LA Horvat-Gitsels… - British Journal of …, 2022 - bjo.bmj.com
Background Patient-reported outcome measures (PROMs) are increasingly used in
paediatric ophthalmology. However, little is known about the distribution of PROM scores …