Sustaining Joy in Serious Neurologic Illnesses
S Seshadri, J Hauser, BM Kluger - Seminars in Neurology, 2024 - thieme-connect.com
The goals of medicine tend to be framed around addressing suffering, pathology, and
functional deficits. While this is a natural orientation when dealing with serious illness, it is …
functional deficits. While this is a natural orientation when dealing with serious illness, it is …
Amyotrophic lateral sclerosis in Argentina: unveiling the burden of treatment through patient and caregiver perspectives
JP Alonso, N Ini, A Villarejo, M Belizán… - Disability and …, 2024 - Taylor & Francis
Purpose To examine the burden of treatment (BoT) experienced by people with Amyotrophic
Lateral Sclerosis (ALS) in Argentina. Methods Qualitative methodological design based on …
Lateral Sclerosis (ALS) in Argentina. Methods Qualitative methodological design based on …
Exploring amyotrophic lateral sclerosis patients' experiences of psychological distress during the disease course in China: a qualitative study
Y Yu, L Zeng, M Wu, C Li, Y Qiu, J Liu, F Yang, P Xia - BMJ open, 2024 - bmjopen.bmj.com
Objective This study aims to explore the psychological distress course of Chinese
amyotrophic lateral sclerosis (ALS) patients after the onset of the disease and to provide …
amyotrophic lateral sclerosis (ALS) patients after the onset of the disease and to provide …
Informella vårdgivares upplevelser av att vårda en närstående med ALS: En litteraturstudie
E Andersson, M Eliasson - 2023 - diva-portal.org
Bakgrund: ALS är en obotlig neurodegenerativ sjukdom som bryter ned motoriska
nervceller. Skelettmuskulatur försvagas och övergår i förlamning. Dödsorsaken är ofta …
nervceller. Skelettmuskulatur försvagas och övergår i förlamning. Dödsorsaken är ofta …