[HTML][HTML] Report of the Lancet Commission on the Value of Death: bringing death back into life

L Sallnow, R Smith, SH Ahmedzai, A Bhadelia… - The Lancet, 2022 - thelancet.com
Executive summary The story of dying in the 21st century is a story of paradox. While many
people are overtreated in hospitals with families and communities relegated to the margins …

[HTML][HTML] Patients' experiences of telehealth in palliative home care: scoping review

SA Steindal, AAG Nes, TE Godskesen, A Dihle… - Journal of medical …, 2020 - jmir.org
Background Telehealth is increasingly being used in home care and could be one measure
to support the needs of home-based patients receiving palliative care. However, no previous …

Economics of palliative care for hospitalized adults with serious illness: a meta-analysis

P May, C Normand, JB Cassel… - JAMA internal …, 2018 - jamanetwork.com
Importance Economics of care for adults with serious illness is a policy priority worldwide.
Palliative care may lower costs for hospitalized adults, but the evidence has important …

State of the science of spirituality and palliative care research part I: definitions, measurement, and outcomes

KE Steinhauser, G Fitchett, GF Handzo… - Journal of pain and …, 2017 - Elsevier
Abstract The State of the Science in Spirituality and Palliative Care was convened to
address the current landscape of research at the intersection of spirituality and palliative …

Patient and public involvement in the design of clinical trials: an overview of systematic reviews

A Price, L Albarqouni, JO Kirkpatrick… - Journal of evaluation …, 2018 - Wiley Online Library
Background Funders encourage lay‐volunteer inclusion in research. There are controversy
and resistance, given concerns of role confusion, exploratory methods, and limited evidence …

Hospital at home: home‐based end‐of‐life care

S Shepperd, DC Gonçalves-Bradley… - Cochrane Database …, 2021 - cochranelibrary.com
Background The policy several countries is to provide people with a terminal illness the
choice of dying at home; this is supported by surveys that indicate that the general public …

EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services–Recommendations from the …

C Bausewein, BA Daveson, DC Currow… - Palliative …, 2016 - journals.sagepub.com
Background: Outcome measurement plays an increasing role in improving the quality,
effectiveness, efficiency and availability of palliative care. Aim: To provide expert …

[HTML][HTML] The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)

AO Oluyase, M Hocaoglu, RL Cripps… - Journal of pain and …, 2021 - Elsevier
Context Systematic data on the care of people dying with COVID-19 are scarce. Objectives
To understand the response of and challenges faced by palliative care services during the …

Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three …

IJ Higginson, BA Daveson, RS Morrison, D Yi, D Meier… - BMC geriatrics, 2017 - Springer
Background Achieving choice is proposed as a quality marker. But little is known about what
influences preferences especially among older adults. We aimed to determine and compare …

Stakeholder involvement in systematic reviews: a scoping review

A Pollock, P Campbell, C Struthers, A Synnot, J Nunn… - Systematic reviews, 2018 - Springer
Background There is increasing recognition that it is good practice to involve stakeholders
(meaning patients, the public, health professionals and others) in systematic reviews, but …