Dementia prevention, intervention, and care

G Livingston, A Sommerlad, V Orgeta, SG Costafreda… - The lancet, 2017 - thelancet.com
Executive summary Acting now on dementia prevention, intervention, and care will vastly
improve living and dying for individuals with dementia and their families, and in doing so …

Meeting the informational, educational, and psychosocial support needs of persons living with dementia and their family caregivers

CJ Whitlatch, S Orsulic-Jeras - The Gerontologist, 2018 - academic.oup.com
Abstract Background and Objectives Meeting the unique and changing needs of individuals
living with Alzheimer's disease and their family caregivers can be very challenging given the …

Living and dying with advanced dementia: a prospective cohort study of symptoms, service use and care at the end of life

EL Sampson, B Candy, S Davis, AB Gola… - Palliative …, 2018 - journals.sagepub.com
Background: Increasing number of people are dying with advanced dementia. Comfort and
quality of life are key goals of care. Aims: To describe (1) physical and psychological …

A cross-sectional study of family caregiver burden and psychological distress linked to frailty and functional dependency of a relative with advanced dementia

W Abreu, D Tolson, GA Jackson, N Costa - Dementia, 2020 - journals.sagepub.com
Psychological health of caregivers of people with dementia is a major public concern. This
study sought to determine the relationship between caregiver burden, psychological …

Moral distress-a threat to dementia care? A qualitative study of nursing staff members' experiences in long-term care facilities

MH Midtbust, E Gjengedal, RE Alnes - BMC health services research, 2022 - Springer
Background Dementia is a public health priority worldwide due to its rapidly increasing
prevalence and poses challenges with regard to providing proper care, including end-of-life …

Palliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development

JT Van der Steen, N Lemos Dekker, MJHE Gijsberts… - BMC palliative …, 2017 - Springer
Background When entering the dying phase, the nature of physical, psychosocial and
spiritual care needs of people with dementia and their families may change. Our objective …

Better palliative care for people with a dementia: summary of interdisciplinary workshop highlighting current gaps and recommendations for future research

S Fox, C FitzGerald, K Harrison Dening, K Irving… - BMC Palliative Care, 2018 - Springer
Background Dementia is the most common neurological disorder worldwide and is a life-
limiting condition, but very often is not recognised as such. People with dementia, and their …

The relationship between frailty, functional dependence, and healthcare needs among community‐dwelling people with moderate to severe dementia

W Abreu, D Tolson, GA Jackson… - Health & social care …, 2019 - Wiley Online Library
This paper examines the healthcare needs of community‐dwelling older people living in
Porto, Portugal, diagnosed with moderate or severe dementia, linked to functional …

Context, mechanisms and outcomes in end of life care for people with advanced dementia

N Kupeli, G Leavey, K Moore, J Harrington, K Lord… - BMC Palliative Care, 2016 - Springer
Background The majority of people with dementia in the UK die in care homes. The quality
of end of life care in these environments is often suboptimal. The aim of the present study …

An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes

G Saini, EL Sampson, S Davis, N Kupeli… - BMC Palliative Care, 2016 - Springer
Background Most people with advanced dementia die in nursing homes where families may
have to make decisions as death approaches. Discussions about end-of-life care between …