Proactive and Integrated Management and Empowerment in Parkinson's Disease protocol for a randomised controlled trial (PRIME-UK) to evaluate a new model of …

FE Lithander, E Tenison, J Ypinga, A Halteren… - Trials, 2023 - Springer
Abstract Background People living with Parkinson's disease experience progressive motor
and non-motor symptoms, which negatively impact on health-related quality of life and can …

The impact of the COVID-19 pandemic on informal caregivers of people with Parkinson's disease residing in the UK: A qualitative study

D Rippon, A Hand, L Dismore… - Journal of geriatric …, 2023 - journals.sagepub.com
Informal caregivers can experience various demands when providing care and support for
People with Parkinson's disease (PwP) in their own homes. The outbreak of SARS-CoV-2 …

Caregiver burden in late-stage parkinsonism and its associations

S Kalampokini, ALAJ Hommel… - Journal of geriatric …, 2022 - journals.sagepub.com
Background: Patients in the late stages of parkinsonism are highly dependent on others in
their self-care and activities of daily living. However, few studies have assessed the physical …

Needs of patients with parkinsonism and their caregivers: a protocol for the PRIME-UK cross-sectional study

E Tenison, FE Lithander, MD Smith… - BMJ open, 2022 - bmjopen.bmj.com
Introduction People with parkinsonism are a highly heterogeneous group and the disease
encompasses a spectrum of motor and non-motor symptoms which variably emerge and …

Influence of care partner presence on outcomes of people with Parkinson's disease: a systematic review

EC DeMarco, S Pruthi, A Cotter… - … Journal of Care …, 2024 - bristoluniversitypressdigital.com
People with Parkinson's disease (PD) often depend on informal care partners (CPs), but the
effect of CP presence on outcomes for people with PD remains unexamined. A systematic …

Symptom progression in advanced Parkinson's disease: Dyadic perspectives

MA Horning, JY Shin, LA DiFusco, M Norton… - Applied nursing …, 2019 - Elsevier
This qualitative descriptive study investigated the self-reported symptoms of people with
advanced Parkinson's disease. Fifteen dyads (person with Parkinson's and family caregiver) …

Key activities of caregivers for individuals with Parkinson disease: a secondary analysis

JY Shin, B Habermann - Journal of Neuroscience Nursing, 2020 - journals.lww.com
BACKGROUND: Individuals with Parkinson disease (PD) require support from family
caregivers because of decreased functional levels in a later stage. Much of the research with …

Understanding caregiver strain in Parkinsonism—A mixed methods approach

A Hand, LL Oates, WK Gray… - Journal of Geriatric …, 2022 - journals.sagepub.com
Background: Parkinsonism, including Parkinson's disease (PD) are progressive
neurological conditions. As these condition progress, individuals will need more support …

[PDF][PDF] Capturing complexity, comorbidity and frailty in people with parkinsonism and understanding their impact

E Tenison - 2023 - research-information.bris.ac.uk
The prevalence of parkinsonism rises with age meaning many individuals are also living
with frailty, multimorbidity and/or cognitive impairment. These health states contribute to …

Exploring sexual dysfunction in care homes

A Hand, B Hill - International Review of Neurobiology, 2022 - Elsevier
Sexual needs and sexuality in older adults continues to be a neglected area of clinical
intervention, particularly in longer term care settings. This is often due to older adults in long …