Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective
B Godard, J Schmidtke, JJ Cassiman… - European journal of …, 2003 - nature.com
The purpose of this paper is to formulate a professional and scientific view on the social,
ethical, and legal issues that impact on data storage and DNA banking practices for …
ethical, and legal issues that impact on data storage and DNA banking practices for …
From pharmacogenetics to personalized medicine: a vital need for educating health professionals and the community
FW Frueh, D Gurwitz - Pharmacogenomics, 2004 - Taylor & Francis
The field of pharmacogenetics will soon celebrate its 50th anniversary. Although science
has delivered an impressive amount of information in these 50 years, pharmacogenetics has …
has delivered an impressive amount of information in these 50 years, pharmacogenetics has …
Our neo-Cartesian bodies in parts
I Hacking - Critical inquiry, 2007 - journals.uchicago.edu
We are obsessed with good health. Hence we are preoccupied with having our bodies in
good working order. Working order? That is a very mechanical way of putting it. Machines …
good working order. Working order? That is a very mechanical way of putting it. Machines …
Governing population genomics: law, bioethics, and biopolitics in three case studies
DE Winickoff - Jurimetrics, 2002 - HeinOnline
Existing scholarship on population genomics has only superficially addressed issues of
power and political process. Accordingly, questions of politics and governance pervade the …
power and political process. Accordingly, questions of politics and governance pervade the …
[PDF][PDF] Health care systems in transition: Iceland
M Halldorsson, V Bankauskaite… - 2003 - apps.who.int
The designations employed and the presentation of the material in this document do not
imply the expression of any opinion whatsoever on the part of the European Observatory on …
imply the expression of any opinion whatsoever on the part of the European Observatory on …
A bold experiment: Iceland's genomic venture
D Winickoff - Ethics, law and governance of biobanking: national …, 2015 - Springer
A Bold Experiment: Iceland’s Genomic Venture | SpringerLink Skip to main content
Advertisement SpringerLink Account Menu Find a journal Publish with us Track your research …
Advertisement SpringerLink Account Menu Find a journal Publish with us Track your research …
[HTML][HTML] Personal Identifiability in the Icelandic Health Sector Database', Refereed Article
E Árnason - The Journal of Information, Law and Technology (JILT), 2002 - warwick.ac.uk
Personal identifiability is a fundamental question in the ongoing debate about the Icelandic
Bill and Act on the Health Sector Database (HSD). If the data are personally identifiable …
Bill and Act on the Health Sector Database (HSD). If the data are personally identifiable …
Legal challenges and strategies in the regulation of research biobanking
E Rynning - The Ethics of Research Biobanking, 2009 - Springer
In this chapter, some of the legal challenges of research biobanking are discussed and
illustrated by examples of possible analogies as well some comparative notes on the …
illustrated by examples of possible analogies as well some comparative notes on the …
[PDF][PDF] 生物样本信息资源库的国内外研究进展
李怡， 张换敬， 刘国彦， 叶辉铭， 林青， 曾骥孟 - 中国医药生物技术, 2012 - cmbp.net.cn
标准化的生物样本信息资源库是基因组, 功能基因组等生命科学研究的关键源头,
是将科研成果快速转化为医疗产品, 应用到临床的重要保证, 也是生物医药研发自主创新体系中 …
是将科研成果快速转化为医疗产品, 应用到临床的重要保证, 也是生物医药研发自主创新体系中 …
[PDF][PDF] Clinical biobanks, from the world to China
JI Xu, XM Zhao, JJ Jiang, YIN Ling… - Biomedical and …, 2014 - besjournal.com
The 2009 annual special issue of Time Magazine on March 23rd summarized the '10 Ideas
Changing the World Right Now', in which 'Biobank'had been listed as the eighth. Biobank or …
Changing the World Right Now', in which 'Biobank'had been listed as the eighth. Biobank or …