Family meetings in palliative care: benefits and barriers
M Glajchen, A Goehring, H Johns… - Current treatment options …, 2022 - Springer
Opinion statement Specialists in palliative care view the family meeting as a means to
engage patients and their families in a serious illness discussion that may clarify the values …
engage patients and their families in a serious illness discussion that may clarify the values …
Mental health challenges and digital platform opportunities in patients and families affected by pediatric neuromuscular diseases-experiences from Switzerland
O Gruebner, A van Haasteren, A Hug… - Digital …, 2023 - journals.sagepub.com
Receiving the diagnosis of a severe disease may present a traumatic event for patients and
their families. To cope with the related challenges, digital interventions can be combined …
their families. To cope with the related challenges, digital interventions can be combined …
Carer preparedness improved by providing a supportive educational intervention for carers of patients with high-grade glioma: RCT results
Background High-grade glioma (HGG) is a rapidly progressing and debilitating disease.
Family carers take on multiple responsibilities and experience high levels of distress. We …
Family carers take on multiple responsibilities and experience high levels of distress. We …
Access to psychosocial support for people with brain tumor and family members: Healthcare professional perspectives
Objectives Ongoing access to psychosocial support is important to maintain the well‐being
of people with brain tumor (PwBT) and their families; yet, there is limited knowledge of …
of people with brain tumor (PwBT) and their families; yet, there is limited knowledge of …
Home-based pediatric cancer care: Perspectives and improvement suggestions from children, family caregivers, and clinicians
LA Jibb, J Chartrand, T Masama… - JCO Oncology …, 2021 - ascopubs.org
PURPOSE: Although the hospital remains the dominant site for delivering most pediatric
cancer care, home-based care is increasingly provided. To effectively deliver …
cancer care, home-based care is increasingly provided. To effectively deliver …
Scoping the psychological support practices of Australian health professionals working with people with primary brain tumor and their families
Objectives This study aimed to scope the psychological support practices of Australian
health professionals providing supportive care to adults with primary brain tumor. Method …
health professionals providing supportive care to adults with primary brain tumor. Method …
Interventions to improve sleep in caregivers: A systematic review and meta-analysis
Unpaid caregivers often experience sleep impairments as an unintended consequence of
providing care. This systematic review and meta-analysis investigated the efficacy of …
providing care. This systematic review and meta-analysis investigated the efficacy of …
The Aftercare Survey: Assessment and intervention practices after brain tumor surgery in Europe
Background People with gliomas need specialized neurosurgical, neuro-oncological,
psycho-oncological, and neuropsychological care. The role of language and cognitive …
psycho-oncological, and neuropsychological care. The role of language and cognitive …
Supporting friends and family of adults with a primary brain tumour: a systematic review
M Heinsch, H Cootes, H Wells, C Tickner… - Health & Social Care …, 2022 - Wiley Online Library
Expanding on the limited work in supportive care for friends and family caregivers of adults
with a primary brain tumour, this review sought to examine all available evidence since 2010 …
with a primary brain tumour, this review sought to examine all available evidence since 2010 …
Health-related quality of life and emotional well-being in patients with glioblastoma and their relatives
Purpose The health-related quality of life (HRQoL) for patients with glioblastoma is known to
be largely affected. Little is known about the HRQoL for relatives and the relationship …
be largely affected. Little is known about the HRQoL for relatives and the relationship …