Family meetings in palliative care: benefits and barriers

M Glajchen, A Goehring, H Johns… - Current treatment options …, 2022 - Springer
Opinion statement Specialists in palliative care view the family meeting as a means to
engage patients and their families in a serious illness discussion that may clarify the values …

Mental health challenges and digital platform opportunities in patients and families affected by pediatric neuromuscular diseases-experiences from Switzerland

O Gruebner, A van Haasteren, A Hug… - Digital …, 2023 - journals.sagepub.com
Receiving the diagnosis of a severe disease may present a traumatic event for patients and
their families. To cope with the related challenges, digital interventions can be combined …

Carer preparedness improved by providing a supportive educational intervention for carers of patients with high-grade glioma: RCT results

GKB Halkett, EA Lobb, JL Phillips, E McDougall… - Journal of Neuro …, 2023 - Springer
Background High-grade glioma (HGG) is a rapidly progressing and debilitating disease.
Family carers take on multiple responsibilities and experience high levels of distress. We …

Access to psychosocial support for people with brain tumor and family members: Healthcare professional perspectives

KM Lion, KE Pike, HM Dhillon, ES Koh… - Psycho …, 2023 - Wiley Online Library
Objectives Ongoing access to psychosocial support is important to maintain the well‐being
of people with brain tumor (PwBT) and their families; yet, there is limited knowledge of …

Home-based pediatric cancer care: Perspectives and improvement suggestions from children, family caregivers, and clinicians

LA Jibb, J Chartrand, T Masama… - JCO Oncology …, 2021 - ascopubs.org
PURPOSE: Although the hospital remains the dominant site for delivering most pediatric
cancer care, home-based care is increasingly provided. To effectively deliver …

Scoping the psychological support practices of Australian health professionals working with people with primary brain tumor and their families

T Ownsworth, K Lion, UM Sansom‐Daly… - Psycho …, 2022 - Wiley Online Library
Objectives This study aimed to scope the psychological support practices of Australian
health professionals providing supportive care to adults with primary brain tumor. Method …

Interventions to improve sleep in caregivers: A systematic review and meta-analysis

CJ Cooper, PJ Owen, M Sprajcer, ME Crowther… - Sleep Medicine …, 2022 - Elsevier
Unpaid caregivers often experience sleep impairments as an unintended consequence of
providing care. This systematic review and meta-analysis investigated the efficacy of …

The Aftercare Survey: Assessment and intervention practices after brain tumor surgery in Europe

J Sierpowska, A Rofes, K Dahlslätt… - Neuro-oncology …, 2022 - academic.oup.com
Background People with gliomas need specialized neurosurgical, neuro-oncological,
psycho-oncological, and neuropsychological care. The role of language and cognitive …

Supporting friends and family of adults with a primary brain tumour: a systematic review

M Heinsch, H Cootes, H Wells, C Tickner… - Health & Social Care …, 2022 - Wiley Online Library
Expanding on the limited work in supportive care for friends and family caregivers of adults
with a primary brain tumour, this review sought to examine all available evidence since 2010 …

Health-related quality of life and emotional well-being in patients with glioblastoma and their relatives

P Ståhl, B Fekete, I Henoch, A Smits, AS Jakola… - Journal of Neuro …, 2020 - Springer
Purpose The health-related quality of life (HRQoL) for patients with glioblastoma is known to
be largely affected. Little is known about the HRQoL for relatives and the relationship …