Achieving goal-concordant care: a conceptual model and approach to measuring serious illness communication and its impact

JJ Sanders, JR Curtis, JA Tulsky - Journal of palliative medicine, 2018 - liebertpub.com
Background: High-quality care for seriously ill patients aligns treatment with their goals and
values. Failure to achieve “goal-concordant” care is a medical error that can harm patients …

Associations among end-of-life discussions, health-care utilization, and costs in persons with advanced cancer: a systematic review

LT Starr, CM Ulrich, KL Corey… - American Journal of …, 2019 - journals.sagepub.com
Background: Aggressive end-of-life (EOL) care is associated with lower quality of life and
greater regret about treatment decisions. Higher EOL costs are also associated with lower …

Top ten tips palliative care clinicians should know about delivering antiracist care to Black Americans

KF Jones, E Laury, JJ Sanders, LT Starr… - Journal of Palliative …, 2022 - liebertpub.com
Racial disparities, including decreased hospice utilization, lower quality symptom
management, and poor-quality end-of-life care have been well documented in Black …

Prevalence of long-term decision regret and associated risk factors in a large cohort of ICU surrogate decision makers

SK Andersen, RA Butler, CCH Chang, R Arnold… - Critical Care, 2023 - Springer
Background Whether surrogate decision makers regret decisions about the use of life
support for incapacitated, critically ill patients remain uncertain. We sought to determine the …

End-of-life decision making in the context of chronic life-limiting disease: a concept analysis and conceptual model

K Levoy, EC Tarbi, JP De Santis - Nursing outlook, 2020 - Elsevier
Background Conceptual ambiguities prevent advancements in end-of-life decision making
in clinical practice and research. Purpose To clarify the components of and stakeholders …

Adapting palliative care skills to provide substance use disorder treatment to patients with serious illness

KF Jones, JJ Ho, Z Sager… - American Journal of …, 2022 - journals.sagepub.com
Background: The majority of Palliative Care (PC) clinicians report recently caring for a
person with a Substance Use Disorder (SUD). The impact of an untreated SUD is associated …

Timing of goals of care discussions in nursing homes: a systematic review

JA Kang, A Tark, LV Estrada, L Dhingra… - Journal of the American …, 2023 - Elsevier
Objectives Discussions between health professionals and nursing home (NH) residents or
their families about the current or future goals of health care may be associated with better …

Assessing decision regret in caregivers of deceased German people with cancer—A psychometric validation of the Decision Regret Scale for Caregivers

MW Haun, A Schakowski, A Preibsch… - Health …, 2019 - Wiley Online Library
Background Decisional regret during or after medical treatments is linked to significant
distress. Regret affects not only patients but also caregivers having an active or passive role …

A prospective cohort study assessing aggressive interventions at the end-of-life among patients with solid metastatic cancer

C Malhotra, F Bundoc, I Chaudhry, I Teo, S Ozdemir… - BMC Palliative Care, 2022 - Springer
Background Many patients with a solid metastatic cancer are treated aggressively during
their last month of life. Using data from a large prospective cohort study of patients with an …

Racial and ethnic differences in informal and formal advance care planning among US older adults

R Lenko, T Voepel-Lewis… - Journal of aging …, 2022 - journals.sagepub.com
Objective To examine advance care planning (ACP) trends among an increasingly diverse
aging population, we compared informal and formal ACP use by race/ethnicity among US …