Achieving goal-concordant care: a conceptual model and approach to measuring serious illness communication and its impact
Background: High-quality care for seriously ill patients aligns treatment with their goals and
values. Failure to achieve “goal-concordant” care is a medical error that can harm patients …
values. Failure to achieve “goal-concordant” care is a medical error that can harm patients …
Associations among end-of-life discussions, health-care utilization, and costs in persons with advanced cancer: a systematic review
Background: Aggressive end-of-life (EOL) care is associated with lower quality of life and
greater regret about treatment decisions. Higher EOL costs are also associated with lower …
greater regret about treatment decisions. Higher EOL costs are also associated with lower …
Top ten tips palliative care clinicians should know about delivering antiracist care to Black Americans
KF Jones, E Laury, JJ Sanders, LT Starr… - Journal of Palliative …, 2022 - liebertpub.com
Racial disparities, including decreased hospice utilization, lower quality symptom
management, and poor-quality end-of-life care have been well documented in Black …
management, and poor-quality end-of-life care have been well documented in Black …
Prevalence of long-term decision regret and associated risk factors in a large cohort of ICU surrogate decision makers
Background Whether surrogate decision makers regret decisions about the use of life
support for incapacitated, critically ill patients remain uncertain. We sought to determine the …
support for incapacitated, critically ill patients remain uncertain. We sought to determine the …
End-of-life decision making in the context of chronic life-limiting disease: a concept analysis and conceptual model
Background Conceptual ambiguities prevent advancements in end-of-life decision making
in clinical practice and research. Purpose To clarify the components of and stakeholders …
in clinical practice and research. Purpose To clarify the components of and stakeholders …
Adapting palliative care skills to provide substance use disorder treatment to patients with serious illness
Background: The majority of Palliative Care (PC) clinicians report recently caring for a
person with a Substance Use Disorder (SUD). The impact of an untreated SUD is associated …
person with a Substance Use Disorder (SUD). The impact of an untreated SUD is associated …
Timing of goals of care discussions in nursing homes: a systematic review
JA Kang, A Tark, LV Estrada, L Dhingra… - Journal of the American …, 2023 - Elsevier
Objectives Discussions between health professionals and nursing home (NH) residents or
their families about the current or future goals of health care may be associated with better …
their families about the current or future goals of health care may be associated with better …
Assessing decision regret in caregivers of deceased German people with cancer—A psychometric validation of the Decision Regret Scale for Caregivers
MW Haun, A Schakowski, A Preibsch… - Health …, 2019 - Wiley Online Library
Background Decisional regret during or after medical treatments is linked to significant
distress. Regret affects not only patients but also caregivers having an active or passive role …
distress. Regret affects not only patients but also caregivers having an active or passive role …
A prospective cohort study assessing aggressive interventions at the end-of-life among patients with solid metastatic cancer
Background Many patients with a solid metastatic cancer are treated aggressively during
their last month of life. Using data from a large prospective cohort study of patients with an …
their last month of life. Using data from a large prospective cohort study of patients with an …
Racial and ethnic differences in informal and formal advance care planning among US older adults
R Lenko, T Voepel-Lewis… - Journal of aging …, 2022 - journals.sagepub.com
Objective To examine advance care planning (ACP) trends among an increasingly diverse
aging population, we compared informal and formal ACP use by race/ethnicity among US …
aging population, we compared informal and formal ACP use by race/ethnicity among US …