Children and young people's contributions to public involvement and engagement activities in health-related research: A scoping review

A Rouncefield-Swales, J Harris, B Carter, L Bray… - PloS one, 2021 - journals.plos.org
Background There has been an increasing interest in how children and young people can
be involved in patient and public involvement and engagement (PPIE) in health research …

The ethics of research with children and young people: A practical handbook

P Alderson, V Morrow - 2020 - torrossa.com
Untitled Page 1 Page 2 The Ethics of Research with Children and Young People Page 3 Sara
Miller McCune founded SAGE Publishing in 1965 to support the dissemination of usable …

Prevalence of patient partner authorship and acknowledgment in child health research publications: an umbrella review

S Vanderhout, DP Richards, N Butcher… - Journal of Clinical …, 2023 - Elsevier
Objectives Children and families are increasingly involved as equal partners in child health
research, however, considerations around authorship have received little attention and there …

Too vulnerable to involve? Challenges of engaging vulnerable groups in the co-production of public services through research

J Amann, J Sleigh - International Journal of Public Administration, 2021 - Taylor & Francis
Involving the public in the co-production of research to inform public service delivery can
help to ensure the appropriateness of services. However, vulnerable groups are often …

Co‐producing research with youth: the NeurOx young people's advisory group model

G Pavarini, J Lorimer, A Manzini… - Health …, 2019 - Wiley Online Library
Abstract Context The 1989 UN Convention on the Rights of the Child states that children
have the right to be heard in all matters affecting them. The Convention inspired a surge in …

Development and pre-testing of the Patient Engagement In Research Scale (PEIRS) to assess the quality of engagement from a patient perspective

CB Hamilton, AM Hoens, S McQuitty, AM McKinnon… - PLoS …, 2018 - journals.plos.org
Objectives To develop and examine the content and face validity of the Patient Engagement
In Research Scale (PEIRS) for assessing the quality of patient engagement in research …

Privileges of power: Authenticity, representation and the “problem” of children's voices in qualitative health research

G Spencer, H Fairbrother… - International Journal of …, 2020 - journals.sagepub.com
The widespread privileging of children's voices in recent times has triggered expansion of
differing forms of qualitative enquiry that aim to “give children a voice.” Engaging children in …

A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research

S Mitchell, N Turner, K Fryer, J Beng, ME Ogden… - Research involvement …, 2024 - Springer
Background There are marked inequalities in palliative care provision. Research is needed
to understand how such inequalities can be addressed, so that everyone living with …

Working with children and young people in research: supportive practices and pathways to impact

C Thomas, E Cockcroft, G Jenkins… - Journal of child health …, 2023 - journals.sagepub.com
Children and young people have much to contribute to the design and delivery of health
research and care. Nevertheless, there are multiple barriers to meaningful and impactful …

Children and adolescents are not small adults: toward a better understanding of multimorbidity in younger populations

M van den Akker, M Dieckelmann, MA Hussain… - Journal of Clinical …, 2022 - Elsevier
Multimorbidity is of an increasing importance for the health of both children and adults but
research has hitherto focused on adult multimorbidity. Hence, public awareness, practice …